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June 9, 2008

 

Dear Friend of ASO:

 

News From ASO:

 

New Director for Ohio Department of Education, Office for Exceptional Children

The Ohio Department of Education has announced the Kathe Shelby, former SERRC Director and currently the Director of Special Education with the Region 3 SST, has been named at the new Director of the Office of Exceptional Children (Director of Special Education for Ohio).  She will start as early as August 1, but no later than September 1, 2008.

 

ASA and NHC Hold Town Hall Meeting on Health Care at ASA National Conference
The National Health Council and Autism Society of America will sponsor a town hall meeting and news conference on Thursday, July 10, 2008, in Orlando, Fla., from 10:30 a.m. to noon. Presidential candidates and their staff have been invited to participate and share their views on this important topic. Happening in conjunction with ASA's 2008 National Conference, the event will feature patients' personal stories on this important topic. A "town hall" meeting will follow the news conference and highlight how you can become more involved in this effort. Read more

NOW OPEN! – 2008 NATTAP Conference Registration
The Autism Society of America (ASA) and Ohio Center for Autism and Low Incidence (OCALI) present the 2nd annual international conference on autism training and technical assistance.  The objectives of the conference are to review current systems models for addressing the needs of individuals with autism spectrum disorders (ASD), promote use of best practice in research and intervention and provide methods for capacity building – all of which contribute to the ultimate goal of improving outcomes for individuals ages 3-21. Join the estimated 1,500-2,000 attendees from across the national and around the globe.

NEW for 2008! Pre-Conference Sessions - November 18, 2008
Pre-Conference sessions are provided by leaders and recognized experts in the field and provide attendees with a valuable opportunity for in-depth discussion and learning.

What: 2008 NATTAP Conference
When: November 19-21, 2008
Where: Greater Columbus Convention Center | Columbus, OH
Early Bird Rate: $185
Parent/Family Member Rate: $100
Pre-Conference Session Rate: $100
Conference registration and information available at: http://www.nattapconference.org

 

The Autism Society of Ohio has provided a grant to OCALI reducing the registration rate for parents from last year's $185 to $100 for all three days of the conference!  Register NOW!


2008 ASA National Conference
July 9-12, 2008
Gaylord Palms Resort & Convention Center
Orlando, Florida

 

2008 Keynoters:
Temple Grandin, Ph.D., Bob Hendren, D.O., & James Ball, Ph.D., BCBA

The Autism Society of America recognizes that families and individuals living with an autism spectrum disorder have a range of issues and needs. The National Conference of the Autism Society of America is the only conference that addresses the range of issues, including early intervention, education, employment, behavior, communication, social skills, biomedical interventions and others, across the entire lifespan. Bringing together the expertise and experiences of family members, professionals and individuals on the spectrum, attendees are able to learn how to more effectively advocate and obtain supports for the individual with ASD. The ultimate goal is to empower family members, individuals on the spectrum and professionals to make informed decisions.

Registration & Conference Schedule

Go to www.autism-society.org/conference for the detailed 2008 ASA National Conference schedule. All session descriptions and speakers are now listed online, with over 200 speakers and 150 sessions. Be sure to register for the conference online by May 1, 2008, to take advantage of Early Bird Registration prices (Individuals on the Spectrum: $150 & Full Conference Attendees: $220).

Exhibitors

Don't miss your opportunity to exhibit at the largest autism conference in the U.S. this year. Network with professionals, families, service providers and more. For more information, contact Meg Ellacott, 2008 ASA National Conference Exhibit Director, at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or 302.260.9487. Be sure to secure your spot now.

Respite Child Care

Bring your entire family. Orlando is a great family vacation location. ASA is partnering with Quest, Inc., to provide respite care onsite. For more information, contact ASA at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

Continuing Education Credits

BCBA, ASHA and CME credits are available.  For session information, contact Autism Society of America at This e-mail address is being protected from spambots. You need JavaScript enabled to view it . The Autism Research Institute presents the Defeat Autism Now (DAN!) Clinician Seminar for professionals on Wednesday, July 9, 2008.

For information about the conference, contact Autism Society America Conference Department at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call 301.657.0881, ext. 10.


Upcoming Events, Resources, etc:

 

- Central Ohio Chapter Autism Society Upcoming 2008 Meetings

- News and Events from the Autism Society of NW Ohio

     Volunteers still needed for Give Autism the Boot
    Toilet training workshop
    Hens’ for Hogs Mudhen’s event for Give Autism the Boot    
    Celebrity Wait Night to benefit Give Autism the Boot
    Save the date – ASNO Family Picnic
    Hot August Night to benefit Northwest Ohio Community Shares
    Info for the upcoming elections

- Effective Use of Behavioral Interventions for Individuals With Autism Spectrum Disorders, Kent State University 

- The Milestones Organization Autism/Asperger's Conference

- 7th Annual Autism Summit of NW Ohio, BGSU

- Upcoming Events - NE Ohio, Complied by Milestones

- The ARC of Ohio presents “CURRENT ISSUES SYMPOSIUM” featuring ODMRDD, ODJFS, OLRS, Columbus Area

- Cleveland Area Trainings from Achievement Centers for Children

- Seminar:“Community Employment:  A Priority of First Consideration”, Columbus

- Preschool Special Education Rule 3301-51-11

- Working with People with Disabilities - a Guide for Responders

- Grants Available for Families Struggling with Child Health-Related Expenses

- Resource: STOMP - Working Together for Military Families of Individuals with Disabilities

- News from ASA:

    ASA Makes Facebook Debut
    ASA Launches New Press Room
    
"VH1 Rock Honors: The Who" Tickets to Benefit ASA
    
New Book Examines Spiritual Aspects of Autism
    
New Web Browser Designed for Children with Autism
    
New Gluten-free, Casein-free Products Available
- ON THE AUTISM ONE RADIO WEBSITE
- Ohio State MH/MR 6th Annual Conference, Columbus
- OASISAUTISM Bike Ride/Walk a thon
- Pump it Up of Medina Sensory Night
- ASPIES Greater Akron - Therapeutic  Martial  Arts  Program 
- Your House or Mine Presentation - MRDD Waivers, Lucas County

If you are interested in participating in research projects, ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys". 


Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information.

Sincerely,

The Autism Society of Ohio
701 S. Main St.
Akron, OH 44311
(330) 376-0211
fax: (330) 376-1226
email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
web: www.autismohio.org
 
Please note:  This is provided for information purposes only. The ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASO, either explicit or impiled.


Central Ohio Chapter Autism Society Upcoming 2008 Meetings

Tuesday, June 24
Tuesday, August 26

7-9 p.m.
at

The Arc of Ohio

“Building A” Conference Room, 2nd Floor

1335 Dublin Road

Columbus, OH 43215

   
Questions?
Contact This e-mail address is being protected from spambots. You need JavaScript enabled to view it  (614-247-6193)
or go to www.autism-centralohio.com


News and Events from the Autism Society of NW Ohio
 

1.      Volunteers still needed for Give Autism the Boot

2.      Toilet training workshop

3.      Hens’ for Hogs Mudhen’s event for Give Autism the Boot

4.      Celebrity Wait Night to benefit Give Autism the Boot

5.      Save the date – ASNO Family Picnic

6.      Hot August Night to benefit Northwest Ohio Community Shares

7.      Info for the upcoming elections

 

Autism Society of NW Ohio: www.asno.org

 

1.      Volunteers are still needed to work Give Autism the Boot on June 20 and 21. You should have gotten a volunteer registration card a few weeks ago. Locations are available near your home or work. Please fill out the attached flyer and return it ASAP. All the dollars raised get given back to autism organizations in the community that help people with autism. For more info go to http://www.giveautismtheboot.org/ourhistory.asp .

2.      Workshop - Toilet training Your Child with Autism, Tuesday, June 10 6:30 – 9 pm, Toledo Hospital, Croxton Memorial Auditorium. Room is still available, but pre-registration is required. Cost: $10 for each parent or family member; $15 for professionals. Call 419-578-2766 to register.

3.      The Mud Hens game on Thursday, June 12th will have an auction that will benefit the GLCA and Give autism the Boot! Harley Davidson “Hog” jerseys will be worn by the players during the game and auctioned off. Tickets available. Call 419-725-HENS or visit http://www.mudhens.com/ .

4.      Celebrity Wait Night to benefit Give Autism the Boot Local celebs will be serving up outstanding Rouge Bistro cuisine to kick-off this year’s “Give Autism the Boot” campaign Monday, June 16th 6:00 - 8:00pm Rouge Bistro, 6060 Renaissance Place (Off Holland-Sylvania, north of Sylvania Ave), 75.00 per person. RSVP and send checks by June 9. Checks to be made out to: Great Lakes Center for Autism or by credit card or log onto www.GiveAutismTheBoot.org . See attached invitation for a list of celebrities.

5.      SAVE THE DATE – 5th Annual ASNO Family Picnic July 27, noon – 3. The Bounce House and Morphy the Caterpillar will be back. Look for a card in the mail.

6.      Hot August Night fundraiser to benefit Northwest Ohio Community Shares (ASNO belongs to this fundraising organization.) Wednesday, August 27, 2008 at THE ROOST at Fifth Third Field Party starts at 6:00 pm Buffet 6:30 – 8:00 pm Ballgame 7:00 pm Tickets $35 Call 419-243-6637 or log on to www.communitysharesnwohio.org . ASNO will have tickets as well.

7.      Info about events relating to the upcoming election. See attached flyer. One of the events is the Presidential Candidate Forum on Disability in Columbus, July 26, Veterans Memorial in Columbus, 12:30 to 3:30 p.m., Via Webcast, at the Ability Center, 12:30 to 3:30 p.m. Information on that is available at www.aapd-dc.org. June 28, Ability Center Community Education Day Ability Center Gym, 2 p.m. to 7 p.m. Hear from local political parties, Presidential candidates’ committees and social change activist groups about why they do what they do and how you can help. Get registered and vote and ask any questions you have about registration. Also see live musical and stand-up comedy performances by Ability Center staff. Hot dogs served.


2008 Topics in Child Development Conference:
June 26th and 27th - Kent State University

Topics in Child Development: Effective Use of Behavioral Interventions for Individuals With Autism Spectrum Disorders.

Individuals with autism spectrum disorders (ASD) present with a wide variety of strengths and needs.  Within the context of a behavioral approach to intervention, parents, educators, and other professionals can develop and enhance positive academic and behavioral skills while simultaneously addressing disruptive behaviors. The 2008 Topics in Child Development Conference will focus on behavioral approaches to intervention that can assist in enhancing existing skills and building new skills to promote success across multiple settings. For complete details, visit: http://www.ehhs.kent.edu/PDO/conferences.cfm

For information on the 2008 conference, please contact Kathy Brown at 330.672.0537 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it


The Milestones Organization Autism/Asperger's Conference

 

http://www.milestones.org/news_conferences.htm

Annual Conference

 

2008 Conference
The 6th Annual Milestones Organization Autism/Asperger's Conference
Life-Long Strategies for Success: School, Home, Community and Work

Keynote Speaker Dr. Jed Baker

Monday, June 16, 2008
8:30 a.m. - 4:45 p.m. (7:45 a.m. registration)
At
Executive Caterers at Landerhaven
6111 Landerhaven Drive, Mayfield Heights, Ohio 44124


Please call Milestones Organization at 216-371-4765 or email at This e-mail address is being protected from spambots. You need JavaScript enabled to view it .


Upcoming Events - NE Ohio, Complied by Milestones
 
June

June 13, "Current Issues Symposium"(the ARC of Ohio), 8:30 am- 3:00 pm.  Worthington Holiday Inn, Worthington, OH 43085.  For more information, contact the ARC of Ohio at 800-875-2723.

June 16, The 6th Annual Milestones Organization Autism/Asperger's Conference:Life-Long Strategies for Success: School, Home, Community and Work  (Milestones Organization), 8:30 am- 4:45 pm. Executive Caterers at Landerhaven, 6111 Landerhaven Drive, Mayfield Heights, Ohio 44124. Keynote Speaker Dr. Jed Baker. For more information call 216-371-4765.


June 18-19: "Working With Students With Asperger's: For Teachers, Therapists, and Any Other Professionals Who Work With Students That Have Asperger's in an Educational Setting." (Achievement Centers for Children), 8:30 am - 3:30 pm. Achieve Consulting, Achievement Centers for Children, 4255 Northfield Road, Highland Hills. For more information, please contact Helen Mack at (216) 292-9700 x248 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it

June 25, PECS for Teachers (Achievement Centers for Children), 9:00 am-3:00 pm.  Achievement Centers for Children, 4255 Northfield Rd, Highland Hills.  PECS for Teachers is designed to teach teachers, therapists, and any other professionals who work with students that have communication difficulties, the Picture Exchange Communication System (PECS). Each participant will receive a training binder as well as a PECS book.  For more information, please contact Helen Mack at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or 216-292-9700 x 248

June 23- 27, How to Use Behavioral Interventions Effectively in the Public School Setting (Milestones Organization), 8:00 am- 4:00 pm.  A Week-Long Hands-on Teacher Training Workshop. Graduate Credits and Professional Development will be available
Teacher Training 2008 Information

June 26- 27, Topics in Child Development: Effective Use of Behavioral Interventions for Individuals With Autism Spectrum Disorders (Kent State University) Individuals with autism spectrum disorders (ASD) present with a wide variety of strengths and needs.  Within the context of a behavioral approach to intervention, parents, educators, and other professionals can develop and enhance positive academic and behavioral skills while simultaneously addressing disruptive behaviors.  For information on the 2008 conference, please contact Kathy Brown at 330.672.0537 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it

June 28, Family Child Learning Center Fundraising Dinner (Akron Children's Hospital) 6:30 pm - 10:30 pm. Sleepy Hollow Golf Course 9445 Brecksville Road , Brecksville, OH. Family Child Learning Center's Integrated Preschool for Children with Autism is a research and intervention program for children with a diagnosis of Autism Spectrum Disorder. The "Summer Fun" fundraiser supports this critical effort and will not only help change the lives and future of our children, but the next generation of children and families to come. For more information, contact Betsy Gunselman at 440-838-5300.

Family June 28, Special Adapted Showing of " Wall-E." (Monarch School at Bellefaire JCB)10:00 am. Chagrin Cinemas, Chagrin Falls. For families who have children with autism spectrum disorder. Children are encouraged to bring personal sensory support items and special snacks (the theater's concession stand will be open, as well). In addition to the special light and sound adaptations, a designated sensory area outside of the theater will be available for anyone who needs to take a break during the screening of the film. The area will be staffed by Monarch School staff. Sensory Stories Available. Tickets are $5 each. Cash only! For more information contact Karin Hess at 216-320-8658. Download Info

The ARC of Ohio presents “CURRENT ISSUES SYMPOSIUM” featuring ODMRDD, ODJFS, OLRS

Friday, June 13, 2008
Worthington Holiday Inn
7007 N. High St.
Worthington, OH 43085
 
For complete details, click here
 
AGENDA
 
8:30 – 9:30                               Registration & Refreshments
 
9:30 – 10:30                             Futures Committee Report:  Next Steps
                                                John Martin, Director ODMRDD
                                                The Future of IO and Level 1 Waivers
                                                Patrick Lanahan, Deputy Director, ODMRDD
 
10:30 – 12:00                           MR/DD Waivers:  How & When are they being distributed?
                                                Patrick Stephan, Deputy Director, Medicaid Development & Administration
Ginnie Whisman, Assistant Deputy Director, Division of Community Services, Developmental Centers, ODMRDD
 
12:00 – 1:00                             Lunch
 
1:00 – 2:00                               Parents' League for Effective Autism Services (PLEAS) Lawsuit Update
                                                Ohio Legal Rights
 
2:00 – 3:00                               Medicaid Buy-In:  What Is It and How Does It Work?
                                                Bev Johnson & Janet Miller, Cerebral Palsy of Ohio, Inc.
 
 
REGISTER EARLY TO SECURE YOUR SEAT IN THIS IMPORTANT UPDATE OF ISSUES!
 
 
“Current Issues Symposium”
REGISTRATION FORM
 
You may register 3 ways:
ONLINE: www.thearcofohio.org  under “Event Calendar”
FAX:  1-614-487-4725
PHONE: 1-800-875-2723
 
NAME:
EMPLOYED BY:
POSITION:
ADDRESS:
COUNTY:
TELEPHONE:
E-MAIL:
REGISTRATION FEES:
Individual with Disability/Family                                                   ______FREE
Professional and/or Service Provider                                            ______$75.00
Please Invoice Me                                                                      PO#_________
TOTAL AMOUNT                                                                       $____________
 
Registration fee includes materials, lunch
ODMRDD CEU’s will be available.

Cleveland Area Trainings from Achievement Centers for Children
 
June 18-19, 2008, 8:30 a.m.-4:00 p.m.
“Working with Students with High Functioning Autism and Asperger’s Syndrome in School Settings”
For special education teachers, paraprofessionals, school administrators, school counselors, and speech therapists.  Topics covered include characteristics of Asperger’s Syndrome and the implication and needs of the student with Asperger’s in an educational setting.
The cost for this two day training is $300 per registrant.
 
June 25, 2008, 9:00 a.m.-3:00 p.m.
“PECS for Teachers”
For teachers, therapists, and any other professionals who work with students that have communication difficulties.  This training is designed to teach the Picture Exchange Communication System (PECS).
The cost is $150 per registrant.
 
July 21-25, 2008, 8:30 a.m.-4:00 p.m.
“Planning a Comprehensive, Blended Method Classroom Program for Students on the Autism Spectrum”
For teachers, occupational and speech therapists and other professionals who work with students with autism Pre-K through Grade 6.  This 5-day training is designed to provide foundational training for classroom teachers and school district teams in the development of a blended method program for students with autism spectrum disorder.
The cost is $750 per registrant.
 
September 25-26, October 3, 2008, 8:30  a.m.-3:00 p.m.
“Paraprofessional Training: Working with Pre-K & K-5 Students with Autism”
This 3-day training for Paraprofessionals in Public School Districts will address autism and the developmental challenges associated with the disorder.  The role and responsibilities of the paraprofessional working with individual children within the context of the classroom and school environment will be overviewed with an emphasis on effective strategies that will enhance children’s developmental skills in the areas of social interaction, language/communication and cognitive processing/problem solving.
The cost is $450 per registrant.
 
All trainings will be held at:
Achievement Centers for Children
4255 Northfield Road
Highland Hills, OH 44128
 
For more information, contact Helen Mack, 216/292-9700 x 248 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it

“Community Employment:  A Priority of First Consideration”
 
Presented by the ARC of Ohio
 
September 11 & 12, 2008
 
Holiday Inn
7007 N. High St.
Worthington, OH 43085
 
MRDD Futures Committee Recommendations:  #3 “Create meaningful employment opportunities for individuals with developmental disabilities.
a.       Collaborate with private and public entities to enhance employment options;
b.      Maximize incentives such as Medicaid Buy-In, tax credits, and wage options, for employees and employers;
c.       Find ways to make community employment a priority and improve school-to-work transition.”
 
Presented By The Arc of Ohio, Inc. in partnership with Ohio APSE – The Ohio Network on Employment, Ohio Association of Adult Services (OAAS), Ohio Legal Rights Service (OLRS)  
 
Keynote:  “Full Employment:  What Does It Take?”  David Mank, Ph.D., Director of the Indiana Institute on Disability and Community at Indiana University
 
Additional Training Sessions Include:
Local and State Level Innovations, David Mank, Ph.D.
Economic Issues of Supported Employment:  What We Know, Thought We Knew, and Need to Figure Out, Robert Cimera, Ph.D., Kent State University
A Time for Change… The Vermont Experience, Bryan Dague, Ed.D., University of Vermont-Center on Disability & Community Inclusion
SPACE IS LIMITED!  REGISTER EARLY!
2008 Community Employment Conference                           Holiday Inn/Worthington
Registration Form                                                                  September 11 & 12, 2008
 
Name and Mailing Information (use a separate form for each person)
 
Name                           ________________________________________ 
Title                              ________________________________________
Organization                 ________________________________________
Mailing Address           ________________________________________County________________________
City                              _________________________  State  ____________________  Zip Code  __________
Phone                           ____________________     Fax  ____________________     E-mail  ______________________
 
Conference Registration
 
Registration Fees:
I am a person with a developmental disability                          q FREE
I will be bringing an attendant                                                 q FREE
I am a family member                                                             q FREE
NOTE: Waiver of Hotel Room cost available upon request for individuals with disabilities only
–-contact The Arc for information--
_______________________________________________________________________________________________________
 
Professionals/Service Providers/Others                                  q $90.00 for one day
                       q $130.00 for both days
 
Days I will attend:
q Thursday, September 11th only
q Thursday, September 11th APSE Awards Luncheon only
q Friday, September 12th only
q I will attend both days
- - includes continental breakfast, lunch and session materials                                                                
                                                                     Amount Enclosed     $ __________
                                                                     Purchase Order# (please send me an invoice)         __________
q I need ODMRDD Continuing Education Units
q I need Social Work Continuing Education Units                                                          
 
Ways to register:
l Online at www.thearcofohio.org
l Fax this form to 614-487-4725
l Call Jodi Murray at 1-800-875-2723
l Mail this form to The Arc of Ohio/1335 Dublin Road, Suite 205-C/Columbus, OH 43215
 
 
*Please call 1-800-875-2723 with any questions*
 
Hotel rooms are available at the Holiday Inn located at 7007 N. High St., Worthington, OH 43085
The overnight fee is $89 (single, double, triple or quadruple occupancy)
Please call 1-614-436-0700 to make your reservation by August 20, 2008
Be sure to mention The Arc of Ohio to receive the group rate.
 
Return to:         The Arc of Ohio
                        1335 Dublin Road, Suite 205-C
                        Columbus, Ohio  43215
                        (614) 487-4720
                        Fax  (614) 487-4725
 
Jodi Murray
Program Specialist
The Arc of Ohio
800-875-2723
614-487-4720 x110
www.thearcofohio.org

Preschool Special Education Rule 3301-51-11

As many of you know, the preschool special education rule, 3301-51-11, was revised a bit to clarify developmental delay. In our discussions with supervisors in February, there were 3 scenarios for eligibility provided:
1.      A child is eligible under the disability  categories that apply for ages 3 through 21- this must be the first consideration; OR
2.      A child is determined eligible under one of the following the disability categories and the team decides to use the term developmental delay instead of the category label
     a.      cognitive disability
     b.      speech/language impairment
     c.      emotional disturbance
     d.      specific learning disability (NEW); OR
3.      A child is determined eligible as a preschool child with a disability due to a developmental delay as defined in 3301-51-01 and 3301-51-11.
You will see the current rule has been rescinded and the new one is second on the list.
The rule will be effective July 1, 2008. Training is being developed and will be provided to the SSTs for regional trainings to occur.

Working with People with Disabilities - a Guide for Responders
 
“Working with People with Disabilities - a Guide for Responders,” a 26-minute training DVD designed to help emergency personnel to work effectively and compassionately with people with disabilities, is available free of charge from the Baltimore County Fire Department.  To request a copy, contact Fire Director James Korn at This e-mail address is being protected from spambots. You need JavaScript enabled to view it  or by phone at 410-887-4860.  This video has been endorsed by a number of state disability and emergency organizations

Grants Available for Families Struggling with Child Health-Related Expenses
       
Deadline: Open

The UnitedHealthcare Children's Foundation ( http://uhccf.org/ )  has
announced that new grants are available to help children who  need
critical health care treatment, services, or equipment not  covered
or not fully covered by their parents' health benefit  plans.

UHCCF provides grants to families to help pay for child health  care
services such as speech therapy, physical therapy, occu-  pational
therapy sessions, prescriptions, and medical equipment  such as
wheelchairs, orthotics, and eyeglasses.

Parents and legal guardians may apply for grants of up to $5,000 
each for child medical services and equipment by completing an 
online application at the UHCCF Web site.

To be eligible for a grant, children must be 16 years of age or 
younger. Families must meet economic guidelines, reside in the 
United States, and be covered by a commercial health benefit  plan.

RFP Link: http://fconline.foundationcenter.org/pnd/15013057/uhccf

STOMP - Working Together for Military Families of Individuals with Disabilities
 

With a population of 1.5 million active duty military members, each day around the globe, there are an estimated 540,000 active duty sponsors each caring for a family member with special medical or educational needs. STOMP is the only National Parent Training and Information Center for military families providing support and advice to military parents without regard of the type of medical condition their child has.

Parents of children with special needs face many challenges:

  a.. Feelings of isolation and anxiety.
  b.. Difficulty navigating disjointed services.
  c.. Severe financial worries.
  d.. Inadequate information.
These challenges are compounded when the family concerned is military. While all military families face certain challenges such as frequent PCS moves/military member being placed in harm's way/deployments, our families with special needs family members face additional difficulties, for example:
  a.. Continuity in provision of IEP services from state to state or from state to DODDS/DDESS (no legal obligation to implement current IEP from another state)
  b.. Availability of military member during IEP meetings/ medical treatments/procedures
  c.. Finding specialists/physicians who will take TRICARE (military health entitlement program)
  d.. Re-establishing relationships with key medical and educational personnel
  e.. Re-establishing eligibility for community resources to assist child and facing waiting lists for services needed
  f.. Identifying within each state the array of services available and differences from state to state
  g.. Differences in implementation of Tricare services across the regions
  h.. Lack of proximate family support due to geographical separations/time differences.
  i.. Additional financial burdens due to certain allotments and aspects of military pay calculations when considering eligibility (i.e. clothing allowance, separate rations, housing).
  j.. Challenges with overseas assignments, i.e. denial of command sponsorship for family member with special needs (command sponsorship is necessary for eligibility for medical/educational systems) increasing family separations.
  k.. Difficulty implementing aspects of IDEA because of host country agreements i.e. transition services into vocational programming, community access, provision of related services.
  l.. Certain laws, regulations and services do not apply in overseas assignments, such as Section 504 of the Rehabilitation Act and the Dept of Ed Regulations for the implementation of IDEA, Medicaid.
  m.. Lack of local community support due to the self-containment/isolation/ military installations and existing relationship between installation and local community.
  n.. Isolation and lack of support due to learned self-reliance of military members
Our families strive to be strong, committed military members, the majority of whom will make a career of their military experience so that their child can continue to benefit from the entitlements of a military retiree. Contrary to popular belief, these families are often extra motivated to serve because of their special needs, overriding low expectations, the military members supporting these families are dedicated and strong, both in their duty to their country and in their family lives.
STOMP knows because each year thousands of families turn to us for reliable support, information and advice. Our commitment is to empower these families in their vital role as advocates, providing training, information and support.

"What I hope to see is a mainstreaming of the process, a vision of the Exceptional Family Member as just another kid who is involved in transition or education. Where it's not something that is an "also ran" or "oh by the way we need to look at that too..' it's part and parcel of the same problem, which is military families, their transition issues and education as a whole. We want to make sure the playing field is level so that we are comparable to or better than our civilian counterparts and that should be across the board. We shouldn't look at out exceptional population as something different or something we connect on to, they are the same family, we are all the same family."
-Fred Chavez STOMP PPTW Graduate 2002

News from ASA:
 
ASA Makes Facebook Debut
Check out the Autism Society of America's new Facebook page:
http://www.autism-society.org/site/R?i=bZKZCUyRpi779BKCJ5awzA.. . In addition to the news and updates you get from ASA-Net and our Web site, here you can find links to autism headlines, photos from ASA events and video clips. Facebook members can also post pictures, add to the discussion board and write on the wall. Stay tuned for more additions soon. As it gets closer to the ASA National Conference starting July 9, we'll be posting updates and highlights from the event as it unfolds.

ASA Launches New Press Room
ASA debuted its new online press room this week. Designed as a resource for the media, this page offers press releases, facts and stats, appearances by ASA representatives or affiliates in the media, and short bios of spokespersons and featured experts. Check it out here
"VH1 Rock Honors: The Who" Tickets to Benefit ASA
For the first time ever, fans will have the opportunity to see some of the biggest names in rock together on one stage as tickets go on sale for the network's third annual "VH1 Rock Honors" event, paying homage to legendary British rock band The Who with a two-hour tribute. "VH1 Rock Honors: The Who" will be taped on Saturday, July 12, from the Pauley Pavilion in Los Angeles and will premiere on VH1 on Thursday, July 17, at 9 p.m., with tribute performances by Pearl Jam, Foo Fighters and The Flaming Lips. Proceeds from ticket sales will benefit VH1 Classic Rock Autism charities, including the Autism Society of America. Read more:
http://www.autism-society.org/site/R?i=BTfna6euHJSJv0rn1UCjWw..
 
New Book Examines Spiritual Aspects of Autism
"The Soul of Autism: Looking Beyond Labels to Unveil Spiritual Secrets of the Heart Savants" challenges the traditionally held beliefs about people with disabilities and allows the reader to discover the spiritual grace of people with autism. Read more: http://www.autism-society.org/site/R?i=Vxc3hsEpQhKs_Fo36kXFMg..

New Web Browser Designed for Children with Autism
ZAC is the first web browser developed specifically for children with autism spectrum disorders. ZAC is the zone that will permit your child to interact directly with games and activities that cater specifically to kids who display the characteristics of autism spectrum disorders, like impairments in social interaction and communication, restricted interests and repetitive behavior. ZAC has been an effective tool for kids with low-, medium- and high-functioning autism. Read more: http://www.autism-society.org/site/R?i=6f2x1gpiPJC1x98if-dqbQ..

New Gluten-free, Casein-free Products Available
Introducing Andean Dream Quinoa cookies and pasta - made with Royal Quinoa from Bolivia. They are individually-wrapped for convenience and contain no dairy products, eggs, soy or nuts, and are also low in sugar. Read more: http://www.autism-society.org/site/R?i=NDIyG-RUwcm11Yss2DzqOQ..

ON THE AUTISM ONE RADIO WEBSITE
www.autismone.org/radio

THE “GREEN OUR VACCINES” RALLY VIDEO FOOTAGE
 
The turnout for the "Green Our Vaccines" rally spearheaded by Jenny McCarthy and Jim Carrey was breathtaking. Jenny and Jim marched with thousands of parents from the Washington Monument to the Capitol Building. The media turned out in droves to cover the press conference that included Jenny, Jim, Robert F. Kennedy Jr, Dr. Boyd Haley, Dr. Jay Gordon, Dr. Jerry Kartzinel, and that honored Congressman Dan Burton, Congressman Dave Weldon, MD, and Congresswoman Carolyn Maloney.  Autism One Radio provides footage of this historic rally organized by TACA, Moms Against Mercury, HEAL, and Generation Rescue.

Ohio State MH/MR 6th Annual Conference

Mental Health Aspects: Treatment & Support
September 3 & 4, 2008
Crowne Plaza North Hotel, Columbus, OH
 
Co-Sponsored by:
Ohio Department of Mental Health (ODMH)
Ohio Coordinating Center of Excellence in MI/MRDD
Ohio Department of Mental Retardation & Developmental Disabilities (ODMR/DD)
Ohio Rehabilitation Services Commission
Ohio Developmental Disabilities Council
Governor’s Council on People with Disabilities

NATIONAL ASSOCIATION FOR THE DUALLY DIAGNOSED
 
For complete information on the conference, click here.
 OASISAUTISM Bike Ride/Walk a thon
 
Hey all....just two shorts weeks before the OASISAUTISM Bike Ride/Walk a thon EVERYONE IS INVITED! You can register before the event, or register that day! You will not be sent home if you have not pre-registered. (pre-registering allows us to know approx. how many will be attending as well as help us with ordering T-shirts)

Invite your friends, family....everyone and come out and have a fun day as we walk, some bike, listen to great music provided by WVMC and then a concert by Sudden Change. There will be prizes, jumpers, activities, raffles, ponies, food and more!
The first 100 kids that register for the walk that morning will receive a beanie baby. The first 25 at the bike ride and the first 25 at the walk to sign in that morning will receive an OASISAUTISM dog tag to remember this event. Compliments of Stan and Sams Army Navy Store.

Bring your kids and have fun.
This is a safe place for the entire family.
See you all on the 21st of June

OASISAUTISM Bike Ride/Walk a thon
June 21
7:30am Biker Sign In
9:45am Walker sign in

515 Oldman Rd
Wooster, OH 44691
Wooster High School Track
 
For more information, visit http://www.oasisautism.org/

Pump it Up of Medina Sensory Night
 
June 2, 2008

To Whom it May Concern,

Pump it Up of Medina is pleased to announce a special evening of family, fitness, friends, and fun designed for children with sensory needs.  Sensory night is a special time for children and their family and friends to visit Pump it Up and play with other children with sensory needs.  We hope that sensory night will allow families to spend time together in a atmosphere that is both safe and stimulating.   If you have any questions please call Pump it Up of Medina at (330)598-1627 or visit our website at www.pumpitupparty.com.  Thank you for your time and consideration.  Please forward this email to any family you feel could benefit from a sensory event.

Sincerely,

Pump it Up of Medina

ASPIES Greater Akron - Therapeutic  Martial  Arts  Program 
Support Group assisting parents of children with
Asperger Syndrome, high functioning Autism, and PDD/NOS
 
In conjunction with Therapeutic  Martial  Arts  Program will present another MEET & GREET
 
Bring your child to group night - Come enjoy the fun & fellowship.
Summit Academy TMA will give a brief martial arts presentation.
William Considine Professional Building
(across from Akron Children's Hospital Main Entrance)
Floor 2 - Rooms 5 & 6
 
Tuesday, June 17th
6:30 - 8:30 pm
 
Light Refreshments will be served.
 
For further information, contact Joy Spencer 330-745-5115 This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Your House or Mine Presentation - MRDD Waivers
Thursday, June 19, 2008
 
6:30 – 8:30 pm
 
MRDD Waivers
Speaker: Terry Teufel, Lucas County MRDD
 
Terry will give us an overview of Medicaid waivers for the MRDD population  - available waivers, how they’re funded, what waivers can & cannot be used for, and then answer as many of our questions as we can fit into 2 hours!
Don’t have a waiver yet? This discussion will be useful whether you now have a waiver or not, since waivers are becoming the method of providing services in Ohio. 
Self-determination, free choice of provider, and individualized plans pretty much demand alternatives to large facilities, large group homes & ‘sheltered’ services. Learn how other families are using waivers to create new options and more meaningful lives for their children.
 
Home of Lyn & Bill Doll
6536 Carrietowne Ct., Toledo, 43615
RSVP to Joni @ 419-254-4644
or email  This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Bring goodies!
Visit UW FIN’s website at www.unitedwaytoledo.org; click on United Way Services, click on Family Information Network.




Get trade secrets for amazing burgers. Watch "Cooking with Tyler Florence" on AOL Food.
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