Tuesday, May 22nd

  • Create an account
    *
    *
    *
    *
    *
    Fields marked with an asterisk (*) are required.

December 22, 2008

Dear Friend of ASA-ASO:
 
Happy Holidays from ASA-ASO!  The DIGEST will be on "vacation" next week and return January 5, 2009.
 
Visit ASA-ASO's website www.autismohio.org for an "easy to read" version if this does not come through clean on your listserv.  Or sign up to receive your own copy by "registering" on the "login" section of ASA-ASO's homepage.
 
News From ASA-ASO:
 
- ODE-OEC to hold Public Hearing on Revised Special Education Forms
- Budget meetings scheduled with ODRMRDD Director John Martin around the state
- Ohio Budget Update,  Join ASA-ASO Ohio Autism Advocacy Network to help Advocacy efforts
- UPDATE ON GOVERNOR STRICKLAND'S EDUCATION REFORM PROCESS
- Ohio BMV changes policy on Autism Awareness License Plate
- Federal Update
 
Upcoming Events, Resources, etc:
- ASA-Greater Cleveland January Newsletter
- ASA-Central Ohio Latest Newsletter
- News from the ASA
    New Study Shows Families Pessimistic about Future for Children  
    2009 Call for ASA Board of Directors Nominations
    Don't Miss ASA's Day on the Hill 2009
    Make a CHANGE Today! Share your Story with Pres. Elect Obama
    "Can Children with Autism Recover? If So, How?"
    Epilepsy Drug May Increase Risk of Autism in Children
    2009 ASA National Conference, July 22-25 in St. Charles, Ill.
    ICDL Holds Online Edition of 2008 Conference
    Mother and Son Tell Their Story
    New Book Takes an Interdisciplinary Look at Autism Research
    New Series for Speech Development
    Internship Opportunities for Students with Disabilities
    Model Me Kids Holiday DVD Giveaway
"Solitary Genius" Tells Story of New Speech Pathology Graduate
- Easter Seals - ASA, Living with Autism Study
- Special Issue of ASA Magazine Autism Advocate Focuses on Applied Behavior Analysis
- 2009 Milestones Autism Asperger's Conference, June 15, 2009 seeking Proposals 
- Cooking Training on Nintendo
- Article: The spirit of Christmas is alive and well (thanks in part to the ASA-Dayton Chapter and DAFEAT)
- Upcoming Disability Related Conferences, Columbus
- Autism and Alternative Treatments Conference January 30 & 31, 2009
South Bend, Indiana
- Updates from the Ohio Department of Education - Office for Exceptional Children
- Free Travel Training E-Newsletter
- Understanding Asperger Syndrome: A Professor’s Guide  - free downloadable
- Council for Exceptional Children E-Newsletter
- Article: Survey- Parents pessimistic about autism education
- Books from Jessica Kingsley Publishers
- Books on Dietary Interventions
- Books by Jed Baker
- Article: Policy Matters group pushes for mentor-program expansion
- New IDEA Regulations Released by US Department of Education
- Children’s Buy-In Program (CBI) from Ohio Dept. of Job and Family Services

ASA-ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys". 
 
Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information.


Sincerely,

The Autism Society of America - Autism Society of Ohio Chapter
701 S. Main St.
Akron, OH 44311

( 330) 376-0211
fax: (330) 376-1226
email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
web: www.autismohio.org
 
Please note:  This is provided for information purposes only. The ASA-ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASA-ASO, either explicit or implied.
 

News From ASA-ASO:
 
ODE-OEC to hold Public Hearing on Revised Special Education Forms

On January 6, 2009, the Ohio Department of Education (ODE), Office for Exceptional Children, will hold a public hearing on the adoption or revision of two forms that school districts must use in administering programs and services for students with disabilities:

Form PR-06: Evaluation Team Report; and
Form PR-07: Individualized Education Program (IEP).

The hearing is held pursuant to 34 Code of Federal Regulations (CFR) Sections 300.165 and 300.509.
Any party may participate in the public hearing on the adoption or revision of the listed forms. Participants may provide vocal and written testimony, and/or written comments at the hearing.

TIME AND PLACE OF PUBLIC HEARING
The public hearing will be held from 1:30–3:30 p.m. January 6th at the Dublin Metropolitan Library, 75 N. High St., Dublin, OH 43017.
NEED FOR ACCOMMODATIONS
To request an interpreter or other needed services at the hearing, please contact Shirley Crabtree at least 48 hours before the meeting by one of the following means:
 
Letter to Procedural Safeguards, Office for Exceptional Children, Ohio Department of Education, 25 S. Front St., MS 201, Columbus, OH 43215-4183;
Phone call to (614) 387-2250; or
E-mail to This e-mail address is being protected from spambots. You need JavaScript enabled to view it .
 
COPIES OF LISTED FORMS AND PROCEDURES
Copies of the forms listed above are posted on our Guidance Document web site at http://EdResourcesOhio.org.  
 
ADDITIONAL OPPORTUNITY TO COMMENT:
Parties not attending the hearing may submit written comments, only, directly to the Office for Exceptional Children, Ohio Department of Education. Written comments not submitted at the hearing must be sent to Shirley Crabtree by one of the following means:
 
Mail to Procedural Safeguards, Office for Exceptional Children, Ohio Department of Education, 25 S. Front St., MS 201, Columbus, OH 43215-4183;
Fax to (614) 728-1097; or
E-mail to This e-mail address is being protected from spambots. You need JavaScript enabled to view it .  
 
All written comments must be received by the Office for Exceptional Children by 5 p.m. on January 9th, 2009.

Budget meetings scheduled with ODRMRDD Director John Martin around the state
ODMRDD Director John Martin, will host ‘budget conversations’ in five locations throughout the state, during the first two weeks in January 2009.  Co-sponsors of the meetings include the Ohio Association of County Boards of MRDD (OACBMRDD); the Ohio Association of Superintendents of County Boards of MRDD (OASCBMRDD), the Ohio Provider Resource Association (OPRA); The Arc of Ohio, and The League (formerly OLMR).
 
Director Martin will listen to any interested participants in the MRDD community -- including stakeholders, service providers,  individuals, and families – as we look at ways to maximize available resources while maintaining quality services.  As Director Martin has stated previously, 
 
You are encouraged to attend at least one of these very important meetings.
 
Schedule of 'Budget Conversations'
- All Meetings will be from 7-9 p.m. -
 
January 7, 2009
Guernsey County Board of MRDD
60770 Southgate Road
Byesville, Ohio 43723-9699
(740) 439-4451
 
January 8, 2009
The Findlay Inn & Conference Center
200 E. Main Cross Street
Findlay, Ohio 45840
(419) 422-5682
 
January 12, 2009
Cox Arboretum & Gardens Metro Park
6733 Springboro Pike
Dayton, Ohio 45449
(937) 434-9005
 
January 13, 2009
Holiday Inn Columbus/Worthington
7007 N. High Street
Worthington, Ohio 43085
(614) 436-0700
 
January 15, 2009
Sheraton Suites Akron/Cuyahoga Falls
1989 Front Street
Cuyahoga Falls, Ohio 44221
(330) 929-3000

Ohio Budget Update
Governor Orders Adjustments to Preserve Balanced Budget
As National Economic Deterioration Continues
 
Columbus, Ohio – Governor Ted Strickland today ordered $640 million in budget adjustments to maintain a balanced budget as the accelerated deterioration of the national economy continues to deprive Ohio of revenue.
This reduction is in addition to the $1.27 billion in budget adjustments already undertaken this year, for a total of $1.9 billion in budget adjustments over the biennium.  This is in line with the Office of Budget and Management’s recession-based scenario, outlined in January 2008, which had forecast a $1.9 billion total budget deficit if the economy fell into recession.  Earlier this month, economists agreed that the national economy has been in recession since December 2007.
Strickland said the adjustments must be undertaken now to give state agencies ample planning time before January 1, when large subsidy payments to local communities are scheduled.
“Ohio’s budget circumstances are substantially worse today than they were just 12 weeks ago,” Strickland said.  “I believe that taking this action today is necessary to make sure the state budget remains balanced and agencies have time to plan.  And we are making this decision while continuing to protect the college tuition freeze and foundation funding for local schools.”
The budget adjustment plan includes a 5.75 percent across-the-board cut to state agency spending levels while holding harmless key programs.  The plan also anticipates a 6 percent increase in the federal share of Medicaid payments early next year. 
“It appears clear that the federal government will include aid to states in any economic recovery package,” Strickland said.  “While we do not yet know what the full scope of that aid will be, we believe it is reasonable to plan for an increase in federal Medicaid funding.”
The budget adjustments announced today protect tax reform passed by previous legislatures, the newly-established homestead tax cut, the tuition freeze for state colleges and universities, and increased funding for local school districts in addition to exempting other key programs.
Strickland recognized state employees for their hard work and dedication during this difficult time.
“I honor and appreciate the hard work every state employee does every day,” Strickland said.  “While any budget cuts mean pain and difficulty for state workers,  I want you to know that I would not have made this decision if I did not believe it was absolutely necessary and the right thing for the people of Ohio.” 
Budget reductions announced today will result in $180.5 million less being spent by state agencies through June 30, 2009.  The remaining $460 million shortfall will be made up through Medicaid spending adjustments and various cash management strategies.
General revenue fund (GRF) Medicaid spending in the Department of Job and Family Services will be adjusted to reflect an anticipated enhanced federal medical assistance percentage (FMAP), additional cost containment and the liquidation of balances in non-GRF funds. 
Specific line items fully exempted include: Department of Education line items for foundation funding, pupil transportation, gifted pupil program, special education enhancements and career/technical education enhancements; Board of Regents line items for OCOG, OIG, SSI, Academic Scholarships, Central State Supplement, Shawnee State Supplement, and capital component; Ohio Department of Job and Family Services line items for Medicare Part D, TANF and Child Care maintenance of effort, and Disability Financial Assistance; Expositions line item for Junior Fair Subsidy; all GRF line items within the Department of Rehabilitation and Correction; all GRF line items within the Department of Youth Services; Ballot Board advertising reimbursement; all line items within the Department of Veterans’ Services; line items for mandate assistance and ballot advertising costs;  debt service line items; line items related to tax relief; several boards and commissions; disability pension and survivor funds administered by the Treasurer of State; and all GRF line items for the legislative and judicial agencies. 
 
We need advocates to help advocate for individuals with autism and their families during the budget process!
 
ASA-ASO forming Ohio Autism Advocacy Network - Join Now!
 

As you are aware, Autism Insurance Parity, HB170 is currently under consideration by the Ohio House Insurance Committee.  The fall elections are coming and immediately following the elections it will be time to address next biennial budget for Ohio.  Additionally, issues regularly come before the state legislature that impact individuals with autism, their families and those who work them throughout Ohio.  And because of this, the Autism Society of Ohio needs your help.

 

We are in the process of putting together an autism advocacy network that has constituents in each of the districts of the members of the Ohio General Assembly, both the House and Senate.  We are looking for advocates all around the state to help us with this effort.

 

You can volunteer to participate in two ways:

·         Team Leader:  Each Ohio district will have an assigned team leader who is responsible for carrying the key ASA-ASO/autism messages when meeting with the legislator (Representatives and Senators), coordinating testimony or letter writing for hearings, and for organizing the team members of their district, etc. 

·         Team Member:  Each Ohio district will have several team members that are available to share their own personal ASA-ASO/autism story, to write letters when needed, and to ask from help from their neighbors/families/friends.  Team members may choose specialize on certain topics – ie. autism insurance parity topic, special education funding, etc. 

 

ASA-ASO is also developing a Legislative Advocacy Manual and will provide local training to constituent volunteer advocates. 

 

If you are interested in participating in this effort, please send your Name, address, city,
zip+4, phone, email address, House District Number and Senate District number and whether you are interested in being a “Team Leader” or a “Team Member” to This e-mail address is being protected from spambots. You need JavaScript enabled to view it .  Please put AUTISM ADVOCACY NETWORK in the subject line.  To find your district numbers, visit www.legislature.state.oh.us and follow the directions under "Locating Legislators".

 

For more information, visit our website at www.autismohio.org

 


UPDATE ON GOVERNOR STRICKLAND'S EDUCATION REFORM PROCESS
Governor Strickland held the first of six regional forums on financing public education on Thursday, November 20th. After the forum, the Governor said it's likely his school-funding plan will be included in his two-year state spending plan to be unveiled early next year.

"We will present a plan; it will be well-thought out; it will be vetted thoroughly", Governor Strickland said. He added, "I am not yet ready to say what all those elements are going to be, but I think some parts of it will be controversial; but people who are trying to second-guess me, I think will be surprised."

There will be five more regional forums across the state throughout December, focusing solely on school funding. Attendance at the forums is by invitation only, but all will be broadcast live on the website http://www.conversationoneducation.org Upcoming forum dates and locations are as follows:

Cleveland -Thursday, December 11th, from 4:30-6 pm
Toledo - Friday, December 12th from 4:30-6 pm
Mansfield -Thursday, December 18th from 4:30-6 pm
Cincinnati - Friday, December 19th from 4:30-6 pm
Athens - Saturday, December 20th from 2:30-4 pm

For more information visit: http://www.conversationoneducation.org

To read related articles please visit:
11/20 The Columbus Dispatch
Governor offers no hints on school reform plan
http://www.columbusdispatch.com/live/content/local_news/stories/2008/11/20/tedschool.html?sid=101

11/21 NBC4i
Strickland Talks School-Funding Formula
http://www.nbc4i.com/midwest/cmh/politics.apx.-content-articles-CMH-2008-11-21-0014.html

11/20 South Side Leader
Governor announces next round of 'Conversation on Education' meetings
http://www.akron.com/akron-ohio-education-news.asp?aID=3969

The following articles include predictions about what might be part of Governor Strickland's education reform plan:

12/03 The Times Gazette
Strickland mulls school funding
http://www.timesgazette.com/main.asp?SectionID=1&SubSectionID=1&ArticleID=158928&TM=35714.81

11/20 WCPN
Governor Still Searching For Equitable Funding Solution For Ohio Schools
http://www.wcpn.org/index.php/WCPN/news/15362/

Akron Beacon Journal
11/16 Ohio has ways to pay for schools
http://www.ohio.com/news/willard/34538449.html

Ohio BMV changes policy on Autism Awareness License Plate
 
Because of privacy concerns, the Ohio BMV will no longer be releasing the names and addresses of those who purchase the Ohio Autism Awareness License Plate to the ASA-Autism Society of Ohio.  $25 from the purchase of each plate benefits the ASA-ASO and we have been sending thank you notes to all those who have purchased a plate.  However, we will no longer be able to do so.  The BMV is currently looking into options to add customer consent to the special license plate process so hopefully we will be able to go back to thanking folks formally in the future.  But whether we are able to send a formal "thank you" or not, please know that the purchase of an autism awareness license plate makes a big difference and helps us help individuals with autism, their families and those who work with them throughout Ohio.

Federal Update

 

The 110th Congress ground to a halt after Senate Republicans successfully blocked consideration of a bailout for the auto industry. No further action is anticipated until the new Congress convenes on January 3. There will be several pro forma sessions in the Senate to prevent President Bush from making any recess appointments.

President-Elect Barack Obama announced his nominees to head two Cabinet agencies of primary importance to disability policy. Former Senate Majority Leader Thomas Daschle (D-SD) has been nominated to head the U.S. Department of Health and Human Services (HHS) and oversee a new White House Office of Health Reform. As HHS Secretary and Director of the new White House office, Senator Daschle will be the Obama Administration’s point person on health care. Jeanne Lambrew, who worked on health care issues in the Clinton Administration will serve as Deputy Director of the White House office.  Shaun Donovan was nominated to be the secretary of the U.S. Department of Housing and Urban Development (HUD). Mr. Donovan, who currently is the housing commissioner for New York City, served as Acting Federal Housing Commissioner and as Deputy Assistant Secretary for Multifamily Housing at HUD during the Clinton Administration.


Upcoming Events, Resources, etc.:
 
ASA-Greater Cleveland January Newsletter
 
Dear Friends of ASGC:
Please click on the following linkhttp://www.admail.net/file/5712/9f09/  to view our January, 2009, Newsletter.  We hope you and your family have a wonderful Holiday Season and a very Happy New Year.
Eileen Hawkins
www.asgc.org
e-mail:  This e-mail address is being protected from spambots. You need JavaScript enabled to view it
(216) 556-4937

ASA-Central Ohio Latest Newsletter
 
News from the ASA
 
New Study Shows Families Pessimistic about Future for Children 
Parents of children with autism are struggling with a host of worries
that impact every aspect of their lives, and are particularly fearful
that their family will lack the life-long supports needed to address
the significant challenges of autism, according to a new study
released this week by Easter Seals. Read more: http://www.autism-society.org/site/R?i=kw-5WFdTAu99BChTcIdLjQ..

2009 Call for ASA Board of Directors Nominations
The Autism Society of America will hold elections in 2009 for two
regional Board positions (Midwest and Southeast regions) and one
At-Large position. Please submit your nominations by Monday, March 2,
2009. For information about qualifications and expectations,
nomination requirements, submission requirements and campaign
guidelines, visit ASA's Board of Directors page:
http://www.autism-society.org/site/R?i=d9Bp9oCELDetAuJ9jFGxrg..
 
Don't Miss ASA's Day on the Hill 2009
Make your voice heard in Washington and register today for ASA's
Day on Capitol Hill 2009, February 25-26! To ensure that families
affected by autism are heard in Washington and beyond, Day on the Hill
2009 will help increase awareness and understanding of autism issues
among federal policymakers and build support for ASA's
legislative priorities. Read more:
http://www.autism-society.org/site/R?i=SR9aZ-rg6jhyQq575r-cqw..

Make a CHANGE Today!
It is time for aggressive action from the grassroots level.
President-Elect Obama and the Transition team need to hear from ASA
and our community in a VERY BIG way! Please visit the Change.gov
Health Care page and advance the agenda to support individuals with
autism and their families. Look for the button where you can submit
your ideas for change. The more people write in to tell the new
administration their autism concerns, the better chance we have of
improving the lives of all affected by autism. Read more:
http://www.autism-society.org/site/R?i=rrsYpPYZgOjN89hFSeYMxw..

"Can Children with Autism Recover? If So, How?"
A new study entitled "Can Children with Autism Recover? If So,
How?" was published in the December 2008 issue of
"Neuropsychology Review." The authors reviewed evidence that 3-25
percent of children reportedly lose their ASD diagnosis. Read more:
http://www.autism-society.org/site/R?i=mf_ma7_FiqydkcmUTtQyCg..

Epilepsy Drug May Increase Risk of Autism in Children
A new study shows that women who take the epilepsy drug valproate
while pregnant may significantly increase their child's risk of
developing autism. The preliminary research is published in the
December 2, 2008, print issue of "Neurology," the medical journal of the
American Academy of Neurology. Read more:
http://www.autism-society.org/site/R?i=1DQvSv7QdZT32HIQmes1UQ..

2009 ASA National Conference, July 22-25 in St. Charles, Ill.
The 2009 ASA National Conference will be held in St. Charles, Ill., at
the Pheasant Run Resort July 22-25. We will be opening registration in
mid-January. Please visit the Frequently Asked Questions on the
conference Web site: www.autism-society.org/conference

We anticipate 2,000 attendees this year and more than 150 exhibitors,
plus speakers from around the globe. In 2008, we were able to expand
our professional credit offerings and create a comprehensive program
that drew a record number of attendees.

Over 60 booths have already sold for next year's event.  To
participate as an exhibitor, program guide advertiser or sponsor,
please contact Meg Ellacott at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or
302-260-9487. Visit www.autism-society.org/conference and click on
exhibit information to learn more.

If you have any questions, don't hesitate to contact us at
This e-mail address is being protected from spambots. You need JavaScript enabled to view it .

ICDL Holds Online Edition of 2008 Conference
The Interdisciplinary Council on Development and Learning Disorders
(ICDL) will hold an online edition of their 2008 annual conference
from January 8-19, 2009, and January 29-February 16, 2009. This online
edition is based on the morning plenary panels at their 12th Annual
Conference last November, "Redefining the Potential for
Emotional and Social Functioning in Children with Autism and Special
Needs." Read more:
http://www.autism-society.org/site/R?i=xieu_q_J0S48oWh4aqTM1g..

Mother and Son Tell Their Story
"Life at the Edge: Living with ADHD and Asperger's Syndrome" is
the true story of one boy and his family's life - with labels
attached. Jan Greenman paints the world of her family and their
journey with Luke, who has autism, with humor, love and honesty. Read
more:
http://www.autism-society.org/site/R?i=rF4j3kvE7PcnPlbchpfRrA..

New Book Takes an Interdisciplinary Look at Autism Research
Research on autism has flourished in the last 20 years; as a result of
this growth, the research has become more specialized within the
neurocognitive, clinical and interventionist fields. In an effort to
show an integrated view of these specialties, a new collection of
research on autism spectrum disorders investigates a range of current
thinking - from functional Magnetic Resonance Imaging studies to
naturalistic intervention. Read more:
http://www.autism-society.org/site/R?i=A-kBFg6alS3hcEe09ca6FQ..

New Series for Speech Development
Speak with Me Books aims to empower children with sounds, words and
phrases they can feel confident and comfortable using in order to
build their confidence and help in the learning process while enjoying
many wonderful and new sounds. Read more:
http://www.autism-society.org/site/R?i=YpkkrzC67xgz0YvjsjqjCg..

Internship Opportunities for Students with Disabilities
The American Association of People with Disabilities is looking for
college students with disabilities to apply for 2009 Summer
Internships for Students with Disabilities in Washington, D.C. Read
more:
http://www.autism-society.org/site/R?i=svI2yUAdi-R4fxKEPrg6iQ..

Model Me Kids Holiday DVD Giveaway
Model Me Kids is offering a 3-set of their videos for your favorite
teacher of your child with autism. Read more:
http://www.autism-society.org/site/R?i=gn1DvT46vtzhM4CumQP-PA..

"Solitary Genius" Tells Story of New Speech Pathology Graduate
Fresh out of college, with a degree in Speech Pathology, Maureen
Marshall landed her first real job as a teacher to a special-needs
population of students. She was asked to participate in a
revolutionary early intervention educational program for kids with
severe communication problems. Little did she know that this
extraordinary year would entirely transform her and her understanding
of the world. Read more:
http://www.autism-society.org/site/R?i=A6O11u47Yf9wMP1F0pooPQ..

Easter Seals - ASA, Living with Autism Study

What do families need to put their minds at ease in living with autism?

That's what Easter Seals wanted to find out. So this summer, thanks to the generous support of MassMutual Financial Group, we worked in cooperation with the Autism Society of America to conduct the Easter Seals Living with Autism Study. Autism now affects more than 1.5 million Americans and their families -- yet services and support for people living with autism are few and far between.

Easter Seals surveyed over 2,500 parents of children who have autism and parents of typically developing children about daily life, relationships, independence, education, housing, employment, finances and healthcare.

The study results paint a startling picture of the life-long fears, anxieties and critical supports needed to raise a child with autism. Many parents of children with autism worry that their child won’t fit into society:

  • Nearly 80% are extremely or very concerned about their child’s independence as an adult.
  • Only 14% feel that their child will be able to make life decisions.
  • Only 17% think their child will make friends.
  • They report that they’re “financially drowning,” with concerns for their child’s financial future surpassing the worries of parents with typically developing children.

Easter Seals will use these findings to raise awareness of and advocate for the life-long services families living with autism desperately need.

Download the Living with Autism Study and findings today!

Sincerely,

Patricia Wright, Ph.D., MPH
National Director of Autism Services, Easter Seals Headquarters


Special Issue of ASA Magazine Autism Advocate Focuses on Applied Behavior Analysis
ASA’s quarterly magazine, the Autism Advocate, will spotlight ABA in its upcoming December issue, entitled “Applied Behavior Analysis: A Powerful Tool for Improving the Lives of People with ASD.” Read more
 

2009 Milestones Autism Asperger's Conference, June 15, 2009 seeking Proposals 

The Annual Milestones Conference features research based approaches fostering lifelong strategies for success from early childhood to adulthood.  The conference is an opportunity for parents, professionals and adults with autism to network, hear about local resources and continue learning best practices for school, home, community and work.
The 2009 Milestones Autism / Asperger's Conference seeks proposals for:
o Concurrent Sessions
o Poster Displays
o Panel Discussions

Deadline: January 16, 2009

For more information, contact Kiersten Johnson at 216-371-4765 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it .  You can also download the proposal guidelines and requirements at www.milestones.org

--
Program and Outreach Coordinator
Milestones Autism Organization
3246 Desota Ave.
Cleveland, OH 44118
216-371-4765
www.milestones.org
Milestones Autism Organization provides Access, Education, Training and Collaboration for the autism community


Cooking Training on Nintendo

http://www.personaltrainercooking.com/
this is a Nintendo DS 'game' that provides step by step cooking instruction. This may be of use in teaching cooking skills to people with mild disabilities or people who have difficulty with short term memory by using more than one modality for teaching (image, sound).


Article: The spirit of Christmas is alive and well (in Dayton)
http://www.daytondailynews.com/o/content/oh/story/opinions/columns/2008/12/17/ddn121708mary.html

By Mary McCarty
Staff Writer
Wednesday, December 17, 2008

Tina Coccia thought her co-workers from Miami Valley Hospital had dropped by with a few Christmas gifts for her family. The Jamestown woman and her husband, Chris, knew how concerned they were since their 9-year-old autistic son, Ethan, had been diagnosed with a brain tumor last month. The devastating diagnosis put into perspective the family's other recent misfortune: Chris is losing his job as an aircraft mechanic at the DHL plant in Wilmington.

Seven co-workers braved the Level I snow emergency Tuesday afternoon to surprise the family with more than a little Christmas cheer. Char Jacobson, one of Tina's fellow X-ray technologists, stepped forward with a short, heartfelt speech: "On behalf of the staff in medical imaging at Miami Valley and Miami Valley South, we present you with checks totaling $5,000. The staff also has donated 600 hours of vacation time so that you can spend time with your family."

Tina looked stunned and replied, "You've got to be kidding me."

In an amazing coincidence, an aide from the Dayton Area Families for Effective Autism Treatment stopped by the same afternoon and presented the family with a check for $2,500. "Families affected by autism all come together in times of need," explained the aide, Brooke Newkirk. The family also has received emotional and financial support from the Autism Society of Greater Dayton.

Only five weeks ago, Ethan began vomiting and complaining, "My head hurts."

His pediatrician suspected dehydration, then referred Ethan to Children's Medical Center in Dayton when he didn't get better. "We thought they would put him on fluids and he would perk right up," Tina recalled. But Ethan didn't perk up. He suffered a seizure in the hospital, and a series of tests revealed the reason: an inoperable tumor, as big as an egg, embedded in his brain stem. Radiation to shrink the tumor is the only course of treatment, but because of his autism Ethan must be medicated before undergoing the treatment.
"Eighty-five percent of patients with this condition make it less than two years," Tina said. "But in my mind I'm staying positive."

The family drives more than an hour every weekday to Children's Hospital in Cincinnati for Ethan's treatment. Many nights, when they get home, a home-cooked meal is waiting for them — one of countless thoughtful acts by their neighborhood church, Shawnee Baptist. The Coccias aren't even members. "It's amazing how everyone opens their arms," Tina said.

Chris' co-workers have reached out, too, despite the imminent loss of their jobs at DHL. "I don't want to lose my job right now," Chris admitted, "but that's the way it is. I never ask, 'Why me?' Sometimes I ask, 'Why him?' "

Jacobson said she kept the staff informed about Ethan's condition but didn't solicit donations. "The staff just started coming to us and making donations," she said. "Everybody wanted to help out, even people who don't know Tina donated money and gift certificates. This is a true testament to the meaning of Christmas: putting others before you."

It's also a testament to the spirit of a little boy who has fought the odds since being diagnosed with autism at the age of 2.

"Ethan has fought so hard to learn every word he has," Tina said. "He was starting to read simple sentences and doing modified math, getting 100 percent on every spelling test. And now this."

Tina and Chris rarely allow themselves to feel discouraged. "You just have to get through it," said Chris, who is planning to study information technology at Sinclair Community College starting in January.

They know their situation could be far worse. Tina's employer, Miami Valley Hospital, will pick up the family's insurance when Chris gets laid off. Otherwise, they would never be able to pay more than $50,000 in medical bills that have accrued in the past month.

"They must love my wife very much," Chris said of Tina's co-workers, choking up in the process.
Added Tina: "For this to happen in this economy, with people losing their jobs — well, all I can say is the Christmas spirit is alive and well."

Upcoming Disability Related Conferences
 
The Disability Network of Ohio is pleased to Announce
the 10th Solidarity Conference
April 14-16, 2009
If you are a person with a disability, a friend or family member of a person with a disability, an advocate, a volunteer, a teacher, a provider, or other member of the community ... make plans to attend Ohio's leading conference for and about people with disabilities.
Become a part of this milestone event and
 Share experiences and ideas with people from all parts of Ohio
 Collect helpful information and resources
 Learn about new programs
For program and registration information visit http://www.dnos.org/

Multiple Perspectives on Access, Inclusion, and Disability: Change, Challenge Collaboration
April 28 - 29, 2009
Pfahl Executive Education and Conference Center; The Blackwell Hotel
The Ohio State University Campus, Columbus, Ohio
This year’s theme reflects the critical place in history we occupy. Since last year's conference the United Nations has adopted the Convention on Disability; Congress passed the ADA Amendments Act, a new GI bill with significant support for disabled veterans and the Higher Education Opportunity Act which includes significant provisions on disability; the Access Board is proposing changes in Section 508, and the Department of Justice has submitted a final draft of the first substantive changes the regulations to Titles II and III of the ADA since its passage.
For a preview of the program visit:  HTTP://ada.osu.edu/conferences/2009Conf/announcement.html
The final program and registration will be available in early January.

Autism and Alternative Treatments Conference January 30 & 31, 2009
South Bend, Indiana

SPECIAL 2 for 1 Parent Registration through 12/31/08

A collaborate of organizations, Autism Society of Indiana, Autism
Society of Illinois, Autism Society of Mid-Michigan formally Autism
Society of Lansing, Dayton Ohio Autism Society, NE Illinois Autism
Society and many others, have come together to bring the Midwest an
Autism and Alternative Treatments Conference in South Bend, Indiana
this January 30th & 31st.

Featuring Two Renowned Speakers on Autism: Dr. Jim Ball, Ed.D. BCBA,
Co-Chair of the Panel of Professional Advisors for ASA and on the ASA
BOD will be speaking on "ABA in Real Life.. Misconceptions and
Strategies to a Successful Program" and Mr. Scott Bono, Chairman of
the Board for National Autism Association will be speaking on "Our
Common Interest Within The Disability Community"

There is an evening reception in the exhibit hall open to all
participants, a showing of the documentary "Finding The Words" and 18
breakout sessions over the two days. Topics range from specialized
diets, how to recipes, gut issues, to managing behaviors in autism and
advocacy issues.

Visit the conference website for more information, including special
rates for registering before December 31st. Financial assistance is
available for families to attend.

http://www.disabilitygoto.com/eventsregistration.html

For More Information Call 517-420-3313 or email
assistance@disabilitygoto.com

Updates from the Ohio Department of Education - Office for Exceptional Children
 
Please note that ASA-ASO has been working with ODE-OED on the changes in the Autism Scholarship rules and has provided information on how you can provide input on the rule changes in previous issues of the ASA-ASO DIGEST.
 
District Policies and Procedures
 
Districts must adopt new Policies and Procedures that are in compliance with IDEA 2004. OEC will be developing a “model” special education policies and procedures consistent with the new Operating Standards that may be adopted by districts. The “model” policies and procedures will be made available to districts by the first of February. A district may also choose to develop its own policies and procedures. 
 
Districts will be required to send OEC assurances that their Board has adopted the “model” Policies and Procedures or send in the district developed procedures for OEC review.  District special education policies and procedures must be adopted no later than July 1, 2009.
 
More information about this will be provided to you regarding this in January 2009.
 
Medicaid Schools Program
 
The emergency rules for the Medicaid School Program have been filed are effective for the period of December 1, 2008 through l March 1, 2009
 
The Ohio Department of Job and Family Services (ODJFS) also has filed final rules for the program and has scheduled a public hearing regarding the rules for December 30 at 10:00 a.m. at the Rhodes State Office Tower. The rules and the public notice regarding the hearing can be accessed at the Register of Ohio (www.registerofohio.state.oh.us ). The rule numbers are 5101:3-35-01 through 5101:3-35-06. Please note that there is no rule for 5101:3-35-03.
 
Public school districts, publicly funded community schools and the two state schools can apply to ODJFS for a Medicaid Provider number by accessing the provider application at www.odjfs.state.oh.us/forms/results1.asp?stype=FORM_NUM&searchPar=JFS%2006751, completing it as a paper copy and mailing it back to ODJFS.
 
After applying for a Medicaid provider number, the school should notify ODE at This e-mail address is being protected from spambots. You need JavaScript enabled to view it and designate a contact person to who notices regarding training and updates can be sent.
 
Further information will be provided within the near future on the Medicaid School Program.
 
ASP Rules Update
The full State Board of Education approved a Resolution of Intent to rescind the current ASP rules and to adopt the proposed new ASP rules. 
Next steps are below (this schedule is subject to change):
  • January 2009: Proposed rules are filed with Joint Committee on Agency Rule Review (JCARR), Legislative Service Commission (LSC) and Secretary of State.
  • February 9, 2009: State Board holds a Chapter 119 public hearing.
  • March 9, 2009: JCARR holds a public hearing.
  • March 9-10, 2009: State Board approves a Resolution to adopt the rules.
  • March 12, 2009 or after: Final rules are filed with JCARR, LSC and Secretary of State.
  • July 1, 2009: Rules are effective.
FERPA Regulations
Final FERPA regulations are published in the Federal Register. Here is the link to the Federal Register notice:  http://edocket.access.gpo.gov/2008/pdf/E8-28864.pdf.
Highlights in Special Education Newsletter
The Office for Exceptional Children has decide to cease production of the Highlights in Special Education quarterly newsletter as we explore our options for alternative ways to communicate useful and vital information on special education and gifted education to educators and parents.

Free Travel Training E-Newsletter

Subject: Free Travel Training E-Newsletter
Date: Tue, 16 Dec 2008 14:38:45 -0500
From: Terry Moakley < This e-mail address is being protected from spambots. You need JavaScript enabled to view it >

Dear UCEDD Director, We thought that you might be interested in receiving a new free E-Newsletter from the Association of Travel Instruction. Individuals with developmental disabilities who can be trained to use public transportation safely, are being trained in many places throughout the country. If travel training is a service that your institution might be interested in, we are an agency that can help you stay informed about it. We encourage you to visit our website for more information about us,
www.travelinstruction.org, and to sign up for our free E-Newsletter. Thank you, Terence J. Moakley, M.A., ATI president

 


Understanding Asperger Syndrome: A Professor’s Guide  - free downloadable

http://www.researchautism.org/resources/AspergerDVDSeries.asp


Council for Exceptional Children E-Newsletter

Click here


Article: Survey- Parents pessimistic about autism education
 
Survey: Parents pessimistic about autism education
The parents of children with autism are less than enthusiastic about special education resources as well as their children's health and futures, according to a new survey. Seven in 10 parents of children with autism expressed concern about their child's education, with just 19% saying that school adequately prepared their child for adulthood. Education Week (premium article access compliments of Edweek.org) (12/16)

Great Stuff for Teachers Website
 
Click here

Books from Jessica Kingsley Publishers
 
A Book About What Autism Can Be Like.
Sue Adams.
http://www.jkp.com/new/9781843109402

All Cats Have Asperger Syndrome.
Kathy Hoopmann.
http://www.jkp.com/new/9781843104810

Different Croaks for Different Folks: All About Children with Special Learning Needs.
Midori Ochiai.
http://www.jkp.com/new/9781843103929

Can I tell you about Asperger Syndrome?: A guide for friends and family.
Jude Welton.
http://www.jkp.com/new/9781843102069

Different Like Me: My Book of Autism Heroes.
Jennifer Elder.
http://www.jkp.com/new/9781843108153

Joey Goes to the Dentist.
Candace Vittorini and Sara Boyer-Quick.
http://www.jkp.com/new/9781843108542

Order offline:
Jessica Kingsley Publishers, 116 Pentonville Road, London, N1 9JB, UK
Tel: (+44) 020 7833 2307 Fax: (+44) 020 7837 2917 email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Order offline in the US:
Jessica Kingsley Publishers, Inc. 400 Market Street, Suite 400, Philadelphia, PA 19106, USA Tel: (Toll free ordering) 866-416-1078 Tel:
(main office) 215-922-1161 Fax: 215-922-1474 email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it

Books on Dietary Interventions
 
The Encyclopedia of Dietary Interventions
for the Treatment of Autism and Related Disorders
by Lisa Lewis and Karyn Seroussi

Special Diets for Special Kids
The Ultimate Guide to the
Gluten-Free, Casein-Free Diet
by Lisa Lewis, Ph.D.

Special Diets for Special Kids, Two
The Ultimate Guide to the
Gluten-Free, Casein-Free Diet
by Lisa Lewis, Ph.D.

http://www.autismtoday.com/lisa-lewis.html

Books by Jed Baker
 
No More Meltdowns
Positive Strategies for Managing and
Preventing Out-Of-Control Behavior

The Social Skills Picture Book
for High School and Beyond

The Social Skills Picture Book
Teaching play, emotion, and communication to
children with autism

Preparing for Life
The Complete Guide for Transitioning to Adulthood for those with Autism/Asperger's Syndrome
 
Article: Policy Matters group pushes for mentor-program expansion
 
Policy group pushes for mentor-program expansion
An Ohio group is pressing state leaders to expand a training program that offers struggling teachers the chance for one-on-one training with an effective teacher. However, critics of the program say the real issue is the need for an easier, less costly way to fire ineffective teachers. Education Week (premium article access compliments of Edweek.org)/The Associated Press (12/1) 


New IDEA Regulations Released by US Department of Education

On December 1, the Department of Education released new regulations for IDEA Part B that will take effect on December 31, 2008. Here's a brief summary of the major changes.

Parental Consent

If your child has been receiving special education services under IDEA and you wish to revoke consent for services:

• the revocation must be in writing, and
• the school is not required to amend your child’s education records to remove any reference to previously receiving services. §300.9(c)(3)

If parents revoke consent for services being provided to their child:

• the revocation must be in writing
• the school must provide you with written notice (under § 300.503) about their intentions for your child. This written notice may be one way of establishing just when the services should end.
• the school district may not utilize mediation or the due process procedures to challenge your revocation of consent;
• the school is not required to convene an IEP Team or develop an IEP; and
• the school will not be deemed in noncompliance with the IDEA for failure to provide a FAPE to an otherwise eligible child.
§300.300(b)(4)

Representation by Non-Lawyer Advocates

The section on Hearing Rights has been amended to specify that non-lawyer advocates can represent either side (parent or school district) in a due process hearing unless this overrides state law. §300.512(a)(1)

Compliance Issues

A new monitoring and enforcement section is added, establishing a one-year time frame for school districts to fix any IDEA noncompliance issues. Corrective action must be completed one year from the time the problem was discovered. The current regulations have no specific timeline. §300.600(e)

A State now has 120 days, after submitting its annual performance report (APR) to DOE, to provide a report to the public on school performance. This doubles the current allowable time frame. §300.602(b)(1)(i)(A)

Clarifications were also made in the areas of state monitoring, technical assistance, and enforcement; and allocation of funds.

For the complete analysis of comments and changes to the final regulations see the Federal Register for December 1, 2008 at http://www.wrightslaw.com/idea/law/FR.v73.n231.pdf.


Children’s Buy-In Program (CBI) from Ohio Dept. of Job and Family Services

As you may know, the Ohio Dept. of Job and Family Services began the Children’s Buy-In (CBI) program in April. CBI was expected to cover 5,000 kids with special health needs whose working parents were struggling to cover their health care costs. So far, only two children have successfully been enrolled. Part of this is due to the eligibility requirements and the other is simply because families aren’t aware of the program. CBI targets working families with income ABOVE $42,000 per year. To date, 90 percent of those who have applied have actually been under income. Anything you can do to spread the word to eligible families would be greatly appreciated.

Here is the link to the CBI Web site:  http://jfs.ohio.gov/OHP/cbi/index.stm. Families can only apply online. Feel free to add this link to your Web site or in any newsletters/mailings you may send to families and providers working with children. Since CareSource will be the providing access to the services, a marketing brochure is available that includes income requirements, covered services and associated costs. If you have any questions or would like to request a presentation for your organization, please contact me using the information below. Thank you!

Toni Bigby
Consumer Advocacy Director
CareSource Management Group
65 E. State Street, 8th Floor 
Columbus, Ohio 43215 
(614) 255-4673 (o)
(937) 396-3659 (fax)


Facebook Image
Share us on Facebook
Twitter Image

Stay Informed!

Subscribe to our Weekly Digest and keep up on the latest news!


Code:

Joomla : The Autism Society

Put More On Your Plate!

autism_ohio_2

Get Community Rewards!

krogerbanner_logo_header

Shop and Earn for ASO! 

New ABA Schedule App!

App_Icon

You are here: