Dear Friend of ASA-ASO:
Visit ASA-ASO's website www.autismohio.org for an "easy to
read" version if this does not come through clean on your listserv. Or
sign up to receive your own copy by "registering" on the "login" section
of ASA-ASO's homepage.
News From
ASA-ASO:
- ASA-ASO forming
-
- Federal Update/Alerts
Upcoming
Events, Resources, etc:
- ASA-Greater Cleveland March Newsletter
- The ASA-Greater Cleveland Chili Cook-off For Autism
- ASA-Northwest Ohio Chapter Upcoming
Activities
Second Annual West Central Ohio Autism
Conference, Wapakoneta
- Website: Autism Hangout
- A SPECIAL WORKSHOP DEDICATED TO CAREGIVERS OF CHILDREN WITH SPECIAL NEEDS, Cleveland
- Article: Preparing students with special needs for adult life
- 11th Annual Recreation Fair for Children and Youth with Disabilities
- Economic Recovery Employment Stories Needed
- Announcing Council for Exceptional Children's 2009 professional development Web seminars
- Article: Initiatives open door to college for students with disabilities
- The News from Ohio Legal Rights Service February 2009
- Training Opportunities from the Indiana Resource Center for Autism (IRCA)
- PAR Training Programs Around Ohio
- Milestones Family Workshops 2009
- Autism Research Institute February, 2009 Newsletter
- Article: More Ohio parents refusing vaccines for their kids
- 2009 UPCOMING AREA SEMINARS / TRAININGS / EVENTS, NE Ohio
- Road Ahead Series , Toledo
- Beyond Us meeting - mark your calendar now!!, Columbus
- 2009 UPCOMING AREA
SEMINARS / TRAININGS / EVENTS, NE Ohio
ASA-ASO is now posting all research
opportunities on our website. For information on available opportunities, visit
our webpage www.autismohio.org, click on
"Information" along the left side of the home page and then click on
"Studies/Surveys". CHECK OUT NEW LISTINGS AND OPPORTUNITIES!
Have you purchased
your
Sincerely,
The Autism
Society of America - Autism Society of Ohio Chapter
( 330) 376-0211
fax: (330)
376-1226
email:
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
web: www.autismohio.org
Please
note: This is provided for information purposes only.
The ASA-ASO does not endorse or recommend any providers, methodologies or
services. Providing this information should not be construed as an endorsement
by the ASA-ASO, either explicit or implied.
News From
ASA-ASO:
Join us on March 31st and April 1st as the Ohio Disability Community rallies together for change! The growing list of sponsors will be distributed in our next mailing, but we wanted you to have a chance to register today. This event is free for Ohioans with disabilities and their families and only $89 for professionals. You need not register for the Rally on April 1st, which will be the first joint MR/DD and Autism Rally, but you do need to register for March 31st.
Attached is registration information.
The Voice of One –The Power of Many”
Disability Public Policy Legislative Event and Rally
March 31 – April 1, 2009
PRELIMINARY PROGRAM
Tuesday, March 31, 2009 Legislative Day
Hyatt on Capitol Square/Columbus
75 East State St.
Columbus, OH 43215
8:00 a.m. – 10:00 a.m. Registration (includes Continental Breakfast)
10:00 a.m. – Noon Opening Session:
Noon – 1:30 p.m. Awards Luncheon Featuring Guest Speaker
1:45 – 4:45 p.m. Breakout Sessions/Workshops
5:00 – 6:30 p.m. Cocktail Reception for Legislators, Staff & the Administration
Bill Hoskett, Jr., a member of The OSU Hall of Fame, will deliver the Keynote Address. This team leader will provide a motivational presentation on the teamwork we need to succeed in public policy advocacy.
The morning will also include a “State of the State” Address from Doug Lumpkin, Director of the Ohio Dept of Job and Family Services, John Martin Director of the Ohio Dept or MR/DD and Kathe Shelby, Ph.D., Director of the Ohio Office of Exceptional Children.
Afternoon Breakout Sessions will include more detailed information on how to support, serve, and enhance the lives of Ohioans with Disabilities and their families. –More details forthcoming.
Wednesday, April 1, 2009 Rally
Ohio Statehouse – Statehouse Lawn, West Plaza (High St.)
Join with hundreds of individuals with disabilities, family members, advocates, providers, county staff and support personnel to present a united voice. Call your state legislator now and make an appointment to visit them and express your views directly.
11:00 a.m. – 12:00p.m. Disability Public Policy Legislative Rally – Exhibit Tables open at 10:30 a.m.
All Day Scheduled Individual Legislative Appointments
Ohio House
Delays Hearings On Operating Budget Pending Administration’s
Documents
With nothing but a one-page placeholder bill and Gov. Ted
Strickland’s “Blue Book” overview to work with, the House has canceled most of
next week’s planned hearings on the two-year, $54.7 billion plan.
The administration has informed the House that the bill won’t be ready for its official introduction until later in the month. In the meantime, the chamber will focus on the separate budgets for transportation (HB 2) and Bureau of Workers’ Compensation and Ohio Industrial Commission.
Ohio House Democrats and Senate Republicans Set Priorities; Autism Insurance Parity, Special Education Vouchers on list
Today the National Vaccine Injury Compensation Program/Court ruled that the combination of the MMR vaccine and thimerosal in other vaccines did not cause or contribute to the cause of neurodevelopmental disorders such as autism in the cases of Cedillo, Hazelhurst, Snyder v. Secretary of Health and Human Services. Though the litigation on which vaccines may have caused autism in some children varies, this ruling only affects those who claim the interaction of the MMR vaccine and thimerosal-containing vaccines cause autism. There are still 5,000 cases still to be decided, and many unanswered questions for the thousands of families affected by autism.
ASA believes that the science of autism causes and treatments need to be more vigorously researched. We hope that primary decisions on medical research and comprehensive treatment and services will be reached through thoughtful dialogue by parents and professionals. Individuals living with autism need help today, and this case illustrates the need for the medical community to probe further into environmental causes of autism. Like all families affected by autism, these families deserve to be heard and supported in their journey raising their children.
What this ruling doesn’t address is the continuing need of these families for services and supports throughout their children’s lifespan, regardless of what caused their autism. While we don’t know the cause for autism, or its interaction with other conditions or environmental aggregators, we need to focus today on what works to maximize the potential of people with autism to help them live meaningful, productive lives. This has always been ASA's mission and we will continue to advocate for research, family and individual support, and lifespan services for people across the autism spectrum.
The dates and locations for the meetings are as follows:
East Central Ohio (rural)
Community Action Agency of Columbiana County
7880 Lincole Place
Lisbon, OH 44432
(Tuesday)
9:30 a.m. – 12:00 p.m.
Provider Focus:
1:30 p.m. – 4:00 p.m.
Northeast Ohio
North Royalton Public Library
14600 State Road
North Royalton, OH 44133
(Wednesday)
9:30 a.m. – 12:00 p.m.
Provider Focus:
1:30 p.m. – 4:00 p.m.
Central Ohio
Columbus Public Health
240 Parsons Ave.
Columbus, OH 43215
(Tuesday)
9:30 a.m. – 12:00 p.m.
1:30 p.m. – 4:00 p.m.
Southeast (rural)
95 West Washington
Nelsonville, OH 45764
(Thursday)
9:30 a.m. – 12:00 p.m.
Provider Focus:
1:30 p.m. – 4:00 p.m.
Northwest Ohio
Wood County Health Department
1840 East Gypsy Lane Road
Bowling Green Ohio 43402
(Tuesday)
9:30 a.m. – 12:00 p.m.
Provider Focus:
1:30 p.m. – 4:00 p.m.
Southwest
3805 Edwards Road, Suite 500
Cincinnati, OH 45209
(Monday)
Patient/Consumer Focus:
9:30 a.m. – 12:00 p.m.
Provider Focus:
1:30 p.m. – 4:00 p.m.
The Ohio
Budget is currently under development and autism insurance parity legislation is
ready to be re-introduced in the Ohio House. Additionally, issues regularly come before the state
legislature that impact individuals with autism, their families and those who
work them throughout
We are in the process of putting together
an autism advocacy network that has constituents in each of the districts of the
members of the Ohio General Assembly, both the House and Senate. We are looking for advocates all around
the state to help us with this effort.
You can volunteer to participate in two
ways:
·
Team Leader: Each Ohio district will have an assigned
team leader who is responsible for carrying the key ASA-ASO/autism messages when
meeting with the legislator (Representatives and Senators), coordinating
testimony or letter writing for hearings, and for organizing the team members of
their district, etc.
·
Team Member: Each Ohio district will have several
team members that are available to share their own personal ASA-ASO/autism
story, to write letters when needed, and to ask from help from their
neighbors/families/friends. Team
members may choose specialize on certain topics – ie. autism insurance parity
topic, special education funding, etc.
ASA-ASO is also developing a Legislative
Advocacy Manual and will provide local training to constituent volunteer
advocates.
If you are interested in participating in
this effort, please send your Name, address, city,
zip+4, phone, email
address, House District Number and Senate District number and whether you are
interested in being a “Team Leader” or a “Team Member” to
This e-mail address is being protected from spambots. You need JavaScript enabled to view it
. Please put AUTISM ADVOCACY NETWORK in
the subject line. To find your
district numbers, visit www.legislature.state.oh.us and follow the directions
under "Locating Legislators".
For more information, visit our website at
www.autismohio.org
Ohio BMV changes policy on
Autism Awareness License Plate
Because of privacy concerns, the Ohio BMV
will no longer be releasing the names and addresses of those who purchase the
Ohio Autism Awareness License Plate to the ASA-Autism Society of Ohio. $25
from the purchase of each plate benefits the ASA-ASO and we have been sending
thank you notes to all those who have purchased a plate. However, we will
no longer be able to do so. The BMV is currently looking into options to
add customer consent to the special license plate process so hopefully we will
be able to go back to thanking folks formally in the future. But whether
we are able to send a formal "thank you" or not, please know that the purchase
of an autism awareness license plate makes a big difference and helps us
help individuals with autism, their families and those who work with them
throughout
Federal Update
The ARRA has been moving extremely quickly through Congress. The Arc and UCP has been working hard to ensure that the economic recovery package signed into law maintains the highest funding levels for disability-related programs and provides for the best possible protections for people with disabilities. The final Bill contains $787 billion in tax cuts and program funding. Most of the funding is intended to grow and protect jobs.
What is the Status of the Legislation?
Jan 28 - passed by House by a vote of 244-188
Feb 10 - passed by Senate by a vote of 61-37
Feb 11 - the Senate - House Conference Committee resolved the differences between the two bills.
Feb 13 – the House passed the conference bill by a vote of 246-183
Feb 13 - the Senate in the process of voting on final passage.
Feb 16 - President Obama is expected to sign the bill into law.
What are the Major Disability-related Provisions and their Funding Levels?
The following is a list of disability specific programs and the amount of increased spending they will receive from the time the bill is enacted through 2010:
HEALTH
Medicaid: An $87 million increase in the Federal government's share of Medicaid spending (FMAP) which runs from October 1, 2008 to December 31, 2010. Sixty-five per cent of the funds will be given to all states. Thirty-five per cent will be used for additional payments (in the form of a decrease in a state's match) for states with high unemployment rates. Each state will receive a "base" 6.2% increase. A state specific analysis can be accessed at http://www.cbpp.org/2-13-09sfp.htm.
There is a "maintenance of effort" requirement which prohibits states from changing eligibility. However there is NO maintenance of effort provision for benefits or services. Therefore it is critical for affiliates and chapters to meet with their State MR/DD and Medicaid agencies, their Governor's office, and State Legislature immediately to urge them to use this increased funding for disability services.
The Act extends a moratoria on Medicaid regulations which are in "final" form (i.e. the school based services/transportation, the targeted case management, and the outpatient rules) from April 1 through June 30, 2009. The bill also contains a "Sense of the Congress" that the Secretary of the Department of Health and Human Services shall not publish any pending Medicaid rule (including the rehabilitative services option proposed rule) in final form.
COBRA: 65% premium subsidy for 9 months.
Health Information Technology: $19 billion to jumpstart computerized health records.
Prevention and Wellness: $1 billion to prevent chronic diseases and to increase immunization programs.
Lead-Based Paint Removal: $100 million - competitive grants to localities and nonprofits to remove lead paint in low income housing
NIH Biomedical Research: $10 billion for increased research.
Special Education: $11.3 billion for the IDEA State Grant Program and $500 million for the IDEA Part C Early Intervention Program. $400 million for the pre-school program.
SSI: A one-time emergency payment of $250 to people who receive Supplemental Security Income (SSI), Social Security, disabled veterans, and other selected benefits.
SSA Disability Backlog and Claims: $500 million to help the Social Security Administration reduce the processing time for claims and appeals decisions
SSA Modernization: $500 million to replace the antiquated NationalComputerCenter.
Vocational Rehabilitation: $540 million for VR State Grant.
Unemployment Insurance: Funding is provided to modernize the unemployment compensation program, to add $25 to the weekly benefit, to continue the current up to 33 weeks of extended benefits through December 31, 2009 and to temporarily suspend federal income tax on the first $2,400 of unemployment benefits per recipient for 2009.
Job Training: $500 million for adult, $1.2 billion for youth services.
Centers for Independent Living: $140 million to assist people with disabilities to live in their communities.
Public Housing Capital Fund: $4 billion for building repair and modernization
$250 million for a new program to fund energy retrofits of Section 811 Supportive Housing for Persons with Disabilities, Section 202 for the Elderly and Project Based Section 8 units to make them for energy efficient. HUD will publish a Notice of Funding Availability shortly announcing details of the program.
HOME Investment Partnerships: $2.25 billion with $2 billion targeted to fill gaps in approved Low Income Housing Tax Credit projects and jump start these stalled projects.
Community Development Block Grant: $1 billion to support housing and services to help hard pressed localities.
Community Services Block Grant: $1 billion for housing, food, employment and healthcare to serve areas hardest hit by the recession.
Low-Income Energy Assistance: Not Funded.
Neighborhood Stabilization: $2 billion for communities to purchase and rehabilitate foreclosed, vacant properties to create more affordable housing.
Home Weatherization: $5 billion to weatherize homes of low income households to reduce energy costs.
Child Care Development Block Grant: $2 billion to serve an additional 300,000 children in low income working families. $93.6 million is targeted to improve infant and toddler care.
Head Start: $2.1 billion to provide services to 110,000 additional children.
For more information, click the links below (note: each of these documents are extremely legthly):
American Recovery and Reinvestment Act of 2009
Conference report 111-16
The DPC will develop more materials on the ARRA. Many questions remain, such as when will the funding be released and how much of the new funding will be subject to regulation or other procedures. UCP affiliates and chapters of The Arc should begin immediately to work their Governors, Mayors, Medicaid Agency, School Systems, and other entities to assure that our constituents and service agencies receive a fair share of this emergency funding.
Upcoming Events, Resources, etc.:
ASA-Greater Cleveland March, 2009, newsletter
Don't forget to "save the date"
for our 4th Annual Greater Cleveland Chili Cook-off for Autism on
Thursday, April 2, 2009 at the Terrace Club in Progressive Field. We are still
in need of donations, personal and corporate sponsorships. Tickets are $20.00
and available at www.asgc.org or by calling (216) 556-4937. We hope to see
everyone there!
http://www.admail.net/file/5784/9f09/
April 2, 2009 @ The Terrace Club in Progressive Field
We need your help!!
Plans are under way for our 4th Annual Greater Cleveland Chili Cook Off for Autism. This is the ASGC's biggest fundraiser of the year. We have been working very hard and have secured some wonderful Corporate Sponsorships and Gifts. However, we still need more!
Here is your chance to give back to the Autism Society of Greater Cleveland. We really need all of our members and friends to actively seek gifts for door prizes and silent auctions. We also need your assistance in seeking Corporate Sponsorhips. Every donation makes a difference. All of the proceeds raised at this event will be used exclusively to assist individuals and families in Northeast Ohio living with autism spectrum disorders.
If you are able to write letters, seek out donations from employers, friends , family or local businesses, please let us know. We would be happy to write letters on your behalf or provide you with marketing materials to do your own mailings.
If your able to help, please e-mail us at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call us at (216) 556-4937. Thank you very much for helping us make a difference for all those living with Autism Spectrum Disorders.
2. Practical Solutions Workshops
Be sure to register for our great workshops in this series. There is still room. Pre-registration is required. Download the form at www.asno.org.
“Introduction to Sensory Integration” will be held on February 25 at the Toledo Hospital Croxton Memorial Auditorium and on February 26 at the Toledo Hospital Education Center - Room K, with Stephanie McBride presenting. This presentation will provide an opportunity to learn what sensory integration is, how it can benefit an individual with autism therapeutically, and how parents and family members can use it at home. This is an introductory level workshop. Stephanie McBride has 15 years experience as a pediatric occupational therapist. She has experience working with children in a variety of settings, including daycare, preschool, school age, one-on-one, and in groups and is currently a co-owner of Sensational Kids Daycare and Learning Center, a daycare facility committed to providing developmentally based daycare for all children including those with special needs.
Grandparent Cheryl Filipkowski who lives in Seneca County is having a Public Informational Meeting about her new Sensory Playroom and Autism Family Resource Center. The guest Speaker will be Dr. Morten Haugland. Dr. Haugland is interested in establishing a school for kids with ASD in the county. If you are interested, be sure to attend.
Saturday, February 21, 2009
Journey’s Family Amusement Center.
Located at 1811 Dickensen Street (Directly
through Kmart parking lot),
Fremont, Ohio, from
10 a.m. until Noon.
For more information please contact Cheryl Filipkowski at 419-638-1051 or you can visit www.thesensoryplayroom.com .
Presented by:
West Central Ohio Autism Community,
Auglaize County Educational Service Center ,
Autism Learning Team of Allan, Auglaize & Hardin Counties
Saturday, March 7, 2009
Wapakoneta High School
One Redskin Trail
Wapakoneta, OH
8:30 a.m. - 3:00 p.m
Keynote Speaker:
Dr. Cathy Pratt
Conference Schedule
8:30 Registration
9:00 Keynote Speaker
11:15 Cracker Barrel Sessions
12:00 Lunch
12:45 Breakout session #1
2:00 Breakout session #2
3:00 Evaluations/Dismissal
Afternoon sessions presented by:
Amy Bixler Coffin, Donna Owens & Sheila Smith
Ohio Center for Autism and Low Incidence
Barb Yavorcik
President, Autism Society of Ohio
Peggy Miller, OTR/L
Auglaize County Educational Service Center
Aaron Lusk, Helen Silber, Cari Fisher & Colette Knutzen
Auglaize County Educational Service Center
Box Lunch Provided
In case of inclement weather, please check our website:
Auglaizeesc.org
Non-refundable Registration Fee: $25.00
Payable to: Auglaize County ESC
Registration deadline February 27, 2009.
For more information please contact:
Kelly Schattschneider at
WCOAC@auglaizeesc
WHAT CAN BE TAX-DEDUCTIBLE???
February 23, 2009
6:30 PM - 8:45 PM
This special session is going to be presented by Anne Dalzell from Skoda Minotti CPS, Business and Financial Advisors, with the unusual circumstances and expenses that families caring for a dependednt with special needs often have.
JUST IN TIME FOR TAXES!
Anne will touch upon medical, dietary, educational and other disability-related expenses that can be under certain circumstances tax-deductible.
Place:
Dollar Bank Conference Room in the Galleria near food court
Address:
1301 East 9th Street - The Galleria, Cleveland, Ohio 44114
Directions: You will be able to enter the Galleria through all doors. If you enter through the revolving doors on St. Clair Entrance, you need to turn left to get to the meeting place. The Dollar Bank Conference Room will be on left.
Parking: You may park at meters on St. Clair or other areas nearby (free after 6 PM). There are also parking lots around the area which offer parking ($2-5). The Galleria Garage will be open for your convenience (Garage closes at 9 PM). Parking fees are around $8-12 for 2-3 hours.
There is no fee for this presentation.
Refreshments will be provided.
RSVP
Please email Andrea to register at This e-mail address is being protected from spambots. You need JavaScript enabled to view it or call 216.544.1231.
Should you have any questions or concerns, or if you need to cancel your registration, please contact me via e-mail at This e-mail address is being protected from spambots. You need JavaScript enabled to view it (preferred) or by calling 216.544.1231.
Other Upcoming workshops:
Mark Your Calendar!
March 12 - “Special Education Advocacy: Making the Most of Your Resources.” Presentation by attorney Judith Saltzman and Katie Wetherbee, special education advocate. Topics will include basic IDEA eligibility, child find evaluations, IEP/FAPE requirements, negotiating with the school district, unilateral placements and legal remedies. Lots of time for Q and A's!! Location: Independence area TBA. More information coming soon.
March 25 - Neurofeedback* - Presentation by Mershona Parshall, LISW, speaking about neurofeedback in a clinical therapy practice on at the Independence Library. Organized by Andrea Hauserman for members of the Autism-Biomed and Biomedical Intervention Groups of Ohio - meeting open to the public! Please email alyricss@yahoo. com for more information.
*This is a meeting supported by NAA-NEO but organized by Andrea Hauserman independently from NAA-NEO.
March 27 - An Evening with Dan Zanes and Friends - Grammy-winning Danny performs a benefit concert with proceeds to go for NAA-NEO's Helping Hand Grants in 2009 - directly supporting children with autism and their families. For tickets and more information please go to www.autismnortheastohio.org/special_events.php.
March 31 - (Bio)Medical Testing Essentials - Presentation by Angela Woodward (Shoemaker), Physician-to-parent liaison at Phillip C. DeMio's office, explaining all the different testing that could be performed to deterct underlying medical issues for your loved one with autism and other neurological disorders. Angela will bring actual tet kits and lab results to this meeting for a very hands on presentation! More information coming soon.
Thank you!
National Autism Association - Northeast Ohio (NAA-NEO)
Helping Hand Program Manager
P. O. Box 221195
Beachwood, OH 44122
E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Phone (216)544-1231
Web: www.autismnortheastohio.org
The transition from school to adulthood can be difficult for some students with special needs to navigate, but New York transition specialist Mary Korpi offers advice to educators and parents. "A good plan includes the student in every step of the way," she said. "For a student who has needs centered around basic life skills and difficulty taking care of themselves, their transition would need to include basic self-care, grooming, how to move into the community, handling money. For students on a more vocational track, they should have the opportunity to explore different career paths and find something that works for them."
http://www.disabilityscoop.com/2009/02/09/transition-brave-world/2082/
Saturday, February 28, 2008
St. Michael’s Woodside Party Center
5025 E. Mill Road
Broadview Heights, OH
10:00 am – 1:00 pm
- Visit and talk to representatives from camps and organizations from around Ohio
- Browse the information tables
- Pick up your free copy of the “2009 Summer Recreational Directory”
- For more information or to reserve your copy of the Directory, call Bonnie Simons at
(216) 524-2770
Have a great weekend.
George
George Jesien, Ph.D.
Executive Director
Association of University Centers on Disabilities (AUCD)
1010 Wayne Avenue, Suite 920
Silver Spring, MD 20910
Tele: 301-588-8252, ext 207
E-mail: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Web: www.aucd.org
-----Original Message-----
From: Kareemdale [mailto: This e-mail address is being protected from spambots. You need JavaScript enabled to view it ]
Sent: Friday, February 13, 2009 4:11 PM
Subject: personal stories
Please pass the word via list serves and your organization websites, etc.
that I am looking for any person with a disability that has gone back to
work or been rehired as a result of the economic recovery plan. For
example, some company starts hiring again as a result of money they are
going to receive or something like that. The sooner, the better if anyone
exists.
I simply don't have good access to all my contact lists so I need you all to
expand my reach into the various communities. for instance, Howard, Jeff
and Karen, I need you all to forward along to all the major deaf groups,
etc. Andy, perhaps getting something out through JFA or another mechanism.
You get the picture.
This is important and time sensitive. Might as well get use to hearing that
over the next 4 years, but the community needs to be organized and ready to
respond to things like this to help me facilitate full inclusion.
Kareem Dale
New for 2009! CEC has introduced webinars on five key issues in special education: assistive technology, co-teaching, gifted standards and differentiated instruction, RTI and positive behavior support. With new low prices and special discounts for attendees participating in an entire series, professional development is more attainable than ever. http://www.cec.sped.org/Source/Meetings/webinars.cfm?section=Professional_Development
The Higher Education Opportunity Act, which was reauthorized by Congress last year, and two grants approved in December, are helping to expand opportunities for higher education to students with intellectual disabilities. Both help match students with available programs, including opportunities for Pell Grants and other assistance. http://www.usnews.com/articles/education/2009/02/13/college-is-possible-for-students-with-intellectual-disabilities.html
The Ohio Legal Rights Service (OLRS) is an independent state agency and the federally and state designated Protection and Advocacy System and Client Assistance Program for people with disabilities in the state of Ohio. The mission of OLRS is to protect and advocate, in partnership with people with disabilities, for their human, civil and legal rights.
Through this bi-monthly newsletter, OLRS intends to inform Ohioans with disabilities, their families, and other interested readers about agency activities and casework, and to provide analyses of issues important to the disability community.
====================
IN THIS ISSUE
1. OLRS Calls for State Agencies to Ban Restraints
2. OSBF Grant Provides Funds for Web Redesign
3. Broad Support Received for PLEAS Appeal
4. OLRS Submits Comments on the Rules of Superintendence
5. OLRS Wins Guardianship Appeal for Individual in District Court
6. Case Summaries
7. Commissioner Appointed
8. New Staff
9. OLRS Submits Comments on Medicaid School Program
10. OLRS Successfully Appeals MBI Decision
11. OLRS Supports SOLIDARITY
12. Hildebrant Joins National Board
13. OLRS Continues Partnership with AARP
14. About OLRS
This newsletter is attached as a PDF file and is also available online in text-only and PDF formats: http://olrs.ohio.gov/asp/OLRSNewsFeb09.asp
website: www.iidc.indiana.edu/irca
Workshop “A Land We Can Share”: Access to the Literate Community for ALL
Date: April 21, 2009 @ Noblesville Intermediate School, Noblesville, IN
Come and learn about how we can give all students, including those with significant disabilities, access to the literate community. Dr. Kluth will explore how many learners have been excluded from literacy experiences that are inclusive, rich, and challenging. Participants will also learn some strategies for including and supporting students with disabilities in reading, writing, speaking, and listening activities. Ideas for enhancing skills in comprehension, fluency, and vocabulary will also be highlighted.
Visit www.iidc.indiana.edu/irca for registration details or contact Kelly Doyle at (812) 855-6508, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it
TEACCH 5 Day Classroom Training Program
Training for Professionals Who Work with Students with Autism.
Date: June 22-26, 2009@ Jackson Creek Middle School, Bloomington, IN
The pace of the program is intensive. The daily schedule combines hands-on classroom experience, lectures on topics related to working with students with autism, and group discussions of classroom activities: A direct, supervised experience in a demonstration classroom setting. Hands-on experience with students with autism of varying ages (within the elementary, middle and high school range) and functioning levels. An intense period of active learning. Presentations and demonstrations of working with students with autism, given by TEACCH experts. Visit www.iidc.indiana.edu/irca for registration details or contact Kelly Doyle at (812) 855-6508, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Presented by William Jones, Director of Operations, Belmont County Board
2/26/2009 • 8:45 AM - 3:00 PM
Worthington Holiday Inn ~ Worthington
3/5/2009 • 8:45 AM - 3:00 PM
Akron General Health and Wellness Center ~ Akron
It is more than a saying; it is a Statewide Initiative that is about respect, safety and quality of life. ODMRDD has set the expectations for a “Positive Intervention Culture “in our field with Information Notice 08-09-02 and 08-11-03 which prohibited prone restraints. The PAR training will discuss the challenges, benefits & values of a “Positive Intervention Culture”. This training will review typical caregiver roles like the Enforcer, Compliance Agent, Developmental Disabilities Cop, Ally & Mentor. You will also learn the tools of good care giving. This PAR training will provide you with tools to evaluate risks associated with aversive interventions and you will get a copy of the ODMRDD crisis intervention program assessment tool (CIPAT).
bullet
Steve & Willie serve on the ODMRDD Statewide Behavior Support Advisory Committee and served on the work group that developed the CIPAT
HOW TO KEEP YOUR SANITY AND BE AN EFFECTIVE SSA
Presented by Lindsay Bachman, SSA Manager and Evily Martinez, SSA - Summit MRDD
3/19/2009 • 8:45 AM - 3:00 PM
Worthington Holiday Inn ~ Worthington
4/1/2009 • 8:45 AM - 3:00 PM
Unified Technologies Center, Cuyahoga Community College ~ Cleveland
To provide resources, hands-on training, and tricks of the trade to increase the participant’s effectiveness in providing service and support administration services. Participants will engage in small group activities, as well as, large group discussion. Areas to be covered: ISP planning and preparation (including the use of checklists and the Quality Services Review-Tool), person centered and futures planning (identifying not only areas of need but showcasing areas of strength and making sure all parties are on the same page when planning for the future), financial requirements (including developing individual budgets for personal and service provision purposes), procuring natural supports (timesaving tips to identify community resources and getting an ISP team to think “outside of the box”), team facilitation and conflict resolution (how to find common ground, how to deal with various personalities, how to get beyond an impasse to achieve outcomes), and time management/stress reduction strategies. A resource manual will be provided to all attendees.
BENEFITS & EMPLOYMENT - MEDICAID, MEDICARE, SOCIAL SECURITY & SSI: LEARN HOW TO MAXIMIZE BENEFITS FOR THOSE YOU SERVE
Presented by Michael Walling, Author
4/29/2009 • 8:45 AM - 3:00 PM
Unified Technologies Center, Cuyahoga Community College ~ Cleveland
4/30/2009 • 8:45 AM - 3:00 PM
Worthington Holiday Inn ~ Worthington
*Supplemental Security Income *The process of SSI: Eligibility to Termination *SSI Work Incentives *Student Earned Income Exclusion *Impairment-Related Work Expenses *Plan for Achieving Self-Support *1619(b) Eligibility (Medicaid) *Expedited Reinstatement of Benefits *Medicaid *Social Security Disability Insurance *The process of SSDI: Eligibility to Termination *SSDI Work Incentives *Subsidy *Impairment-Related Work Expenses * Medicare * Extended Medicare Eligibility * Expedited Reinstatement of Benefits *Ticket to Work Program *Medicaid for Working Disabled
Michael Walling, is the author of The Guide: To Social Security Benefits and Work Incentives, 16h Ed, 2008, and other publications on SSA benefits. He has been conducting workshops throughout the US for the past 15 years. Since 1993, he has presented over 2,000 workshops on this subject throughout the United States. He is highly regarded for his ability to explain this subject in "simple English" and to teach this subject to beneficiaries and professional novices. Michael currently consults with a variety of states and organizations on benefit counseling services, employment services, medical benefits, and related matters. Last year, he provided consultation and training services to the states of Delaware, South Dakota, Idaho, Washington, and a variety of organizations throughout the United States. Many professionals return annually for updates, because he can take a dry subject and make it interesting. You will not want to miss this session!
For more information visit our website at PAR-OHIO.org
Autism Workshops for Families: Adolescent to Adult Series
Transition Planning Part I: Developing
Transition Plans While in High School
Date: Sunday, February 8,
2009
Transition Planning Part II: Available
Community Resources and Eligibility Requirements for Adult
Services
Date: Sunday, March 8,
2009
Cost for all workshops: $30 per person
per workshop or $45 for two family members/caregivers per
workshop
Time: 1:30-4:30 pm
Location: Solon
Community Center 35000 Portz Parkway Solon, OH 44139
Time: 1:30-4:30 pm
Location: Solon
Community Center 35000 Portz Parkway Solon, OH 44139
To register call 216-371-4765, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it , or Register Online
Respite Training: Using Behavioral
Strategies
Participants will learn how to apply
behavioral strategies while giving respite services to families.
Part I-
Introduction to Autism and Asperger's Syndrome; Behavioral Strategies for
Effective play; How to Respond to Inappropriate Behaviors.
Part II-
Role-Playing and Video Presentation to Demonstrate New Skills.
Milestones will keep names on file of participants
who have attended the two day workshop for families interested in respite care
for their children.
Kent State University
Date: Part I- February 22- 6:00-9:00 pm
Location: 200 White Hall, KSU
Date: Part II- February 23- 7:00-9:00
pm
Location: Kent State Library RM 220
Cost: FREE
(sponsored by Alpha Xi Delta, Kent State University)
|
To register call 216-371-4765, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it , or Register Online |
Milestones always encourages families to do a thorough background check on any person they consider to work with their child.
Family and Professional Workshop: Basic ABA and Being
Proactive with Behaviors
This workshop is for family members, caregivers, tutors or others interested in learning basic ABA (Applied Behavior Analysis) strategies to use in the home.
Date: Sunday, March 1, 2009
Location: Mahoning County Help Me Grow
100 DeBartolo
Pl. Suite 220 , Boardman, OH 44512
Time: 3:00
pm- 6:00 pm
Cost: FREE (sponsored by Mahoning Help Me
Grow)
To register call 216-371-4765, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it , or Register Online
Family
Workshop: Basic ABA Principles to use in the Home
Audio Podcast
Available
Family Workshop: Spring Series
ABA Everyday During Play
Date: Sunday, March 8, 2009
Be Prepared: Practical Behavior Plans
Date:
Sunday, April 5, 2009
Tools for Encouraging Communication
Date: Sunday, May 3, 2009
Locations: Garfield Park, Mentor, OH
Cost: $30 per person per workshop or $45 for two family members/caregivers per workshop *Scholarships Available
To register call 216-371-4765, email This e-mail address is being protected from spambots. You need JavaScript enabled to view it , or Register Online
Autism Research Institute February, 2009 Newsletter
Posted 2/16/2009 5:35 PM ET
CINCINNATI (AP) — An increasing number of Ohio parents are using religious or personal exemptions to delay or refuse immunizations for children amid fears that vaccines contribute to autism.
Ohio Department of Health data shows the number of religious and philosophical exemptions nearly quadrupled in Ohio between 1998 and 2008, though that figure still represents fewer than 1 in 100 children.
All states require children to be immunized for school. All but Mississippi and West Virginia allow religious exemptions, and Ohio and 19 others also permit exemptions for personal reasons.
A 2007 Associated Press analysis of states and federal data found many states were seeing increases in the rate of religious exemptions claimed for kindergartners.
Doctors say they're concerned that more exemptions could lead to outbreaks of preventable illnesses among children who haven't had the measles-mumps-rubella vaccine.
"It doesn't take a lot of unvaccinated kids to start a little pocket of infection and epidemic," said Dr. Patricia Manning-Courtney, medical director of the Kelly O'Leary Center for Autism Spectrum Disorders at Cincinnati Children's Hospital Medical Center.
Health officials haven't done a good job of explaining vaccine risks, which leaves parents with doubts, she said.
For years, scientists have debunked the theory of a link between children's vaccines and autism.
A special federal court upheld that view Thursday, turning down families in three cases who contended that a combination of the measles-mumps-rubella vaccine plus other shots triggered autism. Special Master Denise Vowell of the U.S. Court of Claims concluded the families, who had hoped to win compensation, were "victims of bad science."
That won't necessarily stop the small but vocal movement of anti-vaccine parents that includes actress Jenny McCarthy, whose son has autism.
Also among the naysayers are Jim and Jennifer Hansel of suburban Cincinnati, who decided not to get their 7-year-old son vaccinated after their older son developed autism.
The older boy, now 11, began showing signs of autism within a month of his measles-mumps-rubella vaccine when he was one year old, said Jennifer Hansel, who blames the vaccine for the developmental disability.
She says her younger son will be vaccinated before he goes to college, once his immune system is more developed.
"Would I rather have my child get measles than push him into autism? Yeah," she said. "I'm definitely much more worried about autism than measles."
Dr. Bernadine Healy, the former director of the National Institutes of Health, has suggested that vaccines may affect some children more than others, though health officials haven't determined what might make some more susceptible.
"Are vaccines safe? It's like asking me if aspirin is safe," she said. "It's safe most of the time, but in certain people it may not be."
___
Copyright 2009 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.
FEBRUARY
Wed., 02-25 Webinar on Special Needs Planning (online)
Sat., 02-28 Recreation Fair (Broadview Hts)
For further info on any of these activities, contact Joy Spencer at This e-mail address is being protected from spambots. You need JavaScript enabled to view it
The adult service arena can include the Lucas County Board of Mental Retardation and Developmental Disabilities, Bureau of Vocational Rehabilitation and
numerous others. PARENT FACILITATORS: Joni Dehne (Sarah’s Mom), Lyn Doll (Karen’s Mom), Diane Frazee (Jamie’s Mom). It's never too soon to start planning for your child's transition.
All sessions will be held at:
The Epilepsy Center of Northwest Ohio
6405 Southwyck Blvd, Suite 100
Toledo OH 43614
From:
6:30 PM to 8:30 PM
There is no charge for any of the sessions, however, registration is required at least one day before the session you plan to attend.
Please RSVP to: Lyn Doll 419.380.5435 This e-mail address is being protected from spambots. You need JavaScript enabled to view it .
Sessions are below:
FEEL FREE TO :
• Attend all sessions in a series
• “Pick and Choose” any of the
sessions in the series
• Attend a different series
• Repeat any session
1. GPS (Great Parent Support)Sessions
The Steering Wheel
Self-Determination:
What is Self-Determination?
How does it relate to the Vision?
Where does guardianship fit in?
What does informed choice mean?
January 8, 2009 February 26, 2009 April 23, 2009
2. Drivers Manual
When Entitlement Ends:
What is the difference between
education entitlements and adult
services eligibility?
IEP vs. ISP?
January 15, 2009 March 5,2009 April 30,2009
3. Make and Model
Quality of Life:
How do I make informed choices?
What is a provider? And how do I
choose one?
Why do we need Medicaid?
January 22, 2009 March 12,2009 May 7,2009
4. Tires
Employability:
What are employability skills? How
are these skills taught at home
and in the community? Paid employment
vs. meaningful activity?
January 29,2009 March 19,2009 May 14,2009
5. Fuel Tank
Socialization:
How can community participation
be increased? What recreational
options are available? How do I get
where I need to go?
February 5,2009 March 26,2009 May 21,2009
6. The Garage
“Home Sweet Home”
Living Options:
How do I prepare my child for the
future? Who’s making the decisions?
Where will my child live?
February 12,2009 April 2,2009 May 28,2009
What: Beyond Us Meeting - Dr. Bob Gordon
When: February 24th - 7 to 9 pm (4th Tuesday of the month)
Where: Overbrook Presbyterian Church
4131 North High St.
Columbus, Ohio 43214
Here is a link with directions: Overbrook Presbyterian Church - Columbus, OH
RSVP - Nancy Beu, This e-mail address is being protected from spambots. You need JavaScript enabled to view it , 614-267-7679
(please be sure to do this so I can reserve the right size room)
Why:
This is an opportunity to meet Dr. Gordon. He is a psychologist whose office in Dublin. He has worked with young adults with Aspergers for 20 years. My daughter has seen Dr. Gordon for the past 3 years. He helped us get qualified for FCBRMRDD and helped her with issues we all face - rigid thinking, poor problem solving, transitioning from one job to another, issues at college and or course, social isolation. I like the he has given her "homework" in terms of social situations. I asked Dr. Gordon if we would consider doing a support group for young women with Aspirations. So he has agreed to come to our Beyond Us Meeting. Don't hesitate to come if you have a son - it is a chance to meet Dr. Gordon and ask questions. He was scheduled last month but the weather didn't cooperate.
We just saw Dr. Gordon yesterday. He says he is overwhelmed. He also teaches sports psychology at Wright State University. I am really glad that he will take the time to come talk with us. It should be a good meeting.
Please RSVP as the room I have reserved holds about 12 people. If we have more people, I can reserve a larger room if I know in advance.
Nancy Beu
Beyond Us
FEBRUARY
Wed., 02-25 Webinar on Special Needs Planning (online)
Sat., 02-28 Recreation Fair (Broadview Hts)
For further info on any of these activities, contact Joy Spencer at This e-mail address is being protected from spambots. You need JavaScript enabled to view it
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