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March 9, 2009

Dear Friend of ASA-ASO:

 

Visit ASA-ASO's website www.autismohio.org for an "easy to read" version if this does not come through clean on your listserv.  Or sign up to receive your own copy by "registering" on the "login" section of ASA-ASO's homepage.

 

News From ASA-ASO:

- Autism Insurance Coverage Bill HB 8 Introduced, Hearings Scheduled

- Join us March 31, April 1 for Disability (including Autism) Public Policy Legislative Event and Rally, Make appointments with your legislators Now!

- OCALI to hold Ohio Autism Conference in November

- ODMRDD to pull proposed Provider Certification rule and Re-File at a later Date

- ASA-ASO forming Ohio Autism Advocacy Network - Join Now!
- Ohio BMV changes policy on Autism Awareness License Plate

- Federal Update/Alerts

    From the ASA: Urge Congress to support Achieving a Better Life Experience Act of 2009

    President Signs Legislation to Double IDEA Funding: CEC and Special Educators Land Historic

        Victory 

 

Upcoming Events, Resources, etc:

- ASA-Greater Cincinnati organizing Bus for statehouse Rally

- FEAT of GC and ASA-Greater Cincinnati Chapter to host Dr. Vincent Carbone

- FEAT of Greater Cincinnati and  ASA-Greater Cincinnati present The First Annual Bud Newsom Spring Conference

- Upcoming Seminars from ASA-Northwest Ohio Chapter, Toledo

- ASA-Dayton Chapter to hold Autism Walk April 4

- ASA-TRI COUNTY CHAPTER OF OHIO MARCH MEETING NOTICE, Youngstown

- Seminar: A Walk Through the IEP, Toledo

- Competition for Young Artists with Disabilities

- Article: Q-and-A: How to better manage behavioral disabilities

- Article: Study links gene variant to autism, gastrointestinal problems

- Article: Does music help students with autism?

- Seneca County Autism Family Support Group

- News from Ohio Department of Education-Office for Exceptional Children

- Upcoming Trainings in Boardman, OH and PA

- Grants for Summer Programs 

- Winter edition of the DD Quarterly now Available!

- The Ninth Annual Multiple Perspectives on Access, Inclusion, and Disability Change, Challenge, & Collaboration, Columbus

- Milestones 2009 Autism / Asperger's Conference, Cleveland

- Autism Forum 2009, N. Canton

- Article: IACC Advisory Panel Releases First Federal Strategic Plan for Autism Research

- Columbus Hosts Center for Self Determination Training 

- Conference Call about Child and Adolescent Mental Health Issues

- Online Support Group - Moms of Asperger Girls

- Upcoming Events NE Ohio

- 7th Annual Protecting Ohio's Children Conference

- Special Education Seminar, Cleveland

- Article: Tax Strategies for Parents of Children with Special Needs

 

ASA-ASO is now posting all research opportunities on our website. For information on available opportunities, visit our webpage www.autismohio.org, click on "Information" along the left side of the home page and then click on "Studies/Surveys".  CHECK OUT NEW LISTINGS AND OPPORTUNITIES!

 

Have you purchased your Ohio Autism Awareness License Plate yet? To purchase yours, visit www.oplates.com and click on "Specialty Plates" or visit our website at www.autismohio.org for more information.



Sincerely,

The Autism Society of America - Autism Society of Ohio Chapter
701 S. Main St.
Akron, OH 44311

( 330) 376-0211
fax: (330) 376-1226
email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
web: www.autismohio.org
 
Please note:  This is provided for information purposes only. The ASA-ASO does not endorse or recommend any providers, methodologies or services. Providing this information should not be construed as an endorsement by the ASA-ASO, either explicit or implied.

 


News From ASA-ASO:

Autism Insurance Coverage Bill HB 8 Introduced, Hearings Scheduled

 

The Autism Insurance Coverage Bill has been introduced in the Ohio House!

 

Currently in Ohio, insurance companies can exclude autism services and treatments from coverage.  This puts an increased burden on families, schools, and the state support system. Autism is a medical condition and treatments for autism should be covered the same as the treatment for other medical conditions. 

 

Representatives Ted Celeste (D-Columbus) and Nancy Garland (D-Columbus) have introduced an autism insurance coverage bill in the Ohio House of Representatives – HB8.  HB8 is currently under consideration by the Ohio House Healthcare Access and Affordability Committee, chaired by Rep. Lorraine Fende.

 

The first hearing for the newly introduced Autism Insurance Coverage Legislation - HB 8 - has been scheduled before the House Healthcare Access and Affordability Committee on March 11th at 4pm in Rm. 113 of the Statehouse.  This will be the only bill under consideration at this hearing.

 

Bill Sponsors Reps. Celeste and Garland will be testifying that day.  ASA-ASO and an alliance of other interested parties have come together to work collaboratively to pass autism insurance coverage in Ohio and the alliance has arranged for other proponents to testify that day as well.  But your help is also needed!   Filling the hearing room with supporters of HB 8 will send a strong message to members of the committee, so if you are able to do so, please attend the hearing and show your support for Reps. Celeste and Garland and HB 8.

 
HB 8 is a priority bill for the House Democrats so additional hearings on HB 8 are likely to be scheduled within the next several weeks.  ASA-ASO will send out alerts as additional hearings are scheduled.
 
The ASA-Autism Society of Ohio has created a web page devoted exclusively to Autism Insurance Coverage.  Click here to visit.  It contains complete information on Autism Insurance Coverage and HB 8.
Join us March 31, April 1 for Disability (including Autism) Public Policy Legislative Event and Rally
 
Disability Public Policy Legislative Event and Rally - March 31, April 1
 
This event is sponsored, in part, by the ASA-Autism Society of Ohio! The Rally on April 1st is a joint rally with the greater DD community and the Autism Community to show collaboration and solidarity on budget issues.

Join us on March 31st and April 1st as the Ohio Disability Community rallies together for change!  The growing list of sponsors will be distributed in our next mailing, but we wanted you to have a chance to register today.  This event is free for Ohioans with disabilities and their families and only $89 for professionals.  You need not register for the Rally on April 1st, which will be the first joint MR/DD and Autism Rally, but you do need to register for March 31st.
 
Attached is registration information.
 
The Voice of One –The Power of Many”
Disability Public Policy Legislative Event and Rally
 
March 31 – April 1, 2009  
 
PRELIMINARY PROGRAM
 
Tuesday, March 31, 2009 Legislative Day
Hyatt on Capitol Square/Columbus
75 East State St.
Columbus, OH  43215
 
8:00 a.m. – 10:00 a.m.    Registration (includes Continental Breakfast)
10:00 a.m. – Noon             Opening Session: 
Noon – 1:30 p.m.           Awards Luncheon Featuring Guest Speaker
1:45 – 4:45 p.m.             Breakout Sessions/Workshops
5:00 – 6:30 p.m.            Cocktail Reception for Legislators, Staff & the Administration
 
Bill Hoskett, Jr., a member of The OSU Hall of Fame, will deliver the Keynote Address.  This team leader will provide a motivational presentation on the teamwork we need to succeed in public policy advocacy.
 
The morning will also include a “State of the State” Address from Doug Lumpkin, Director of the Ohio Dept of Job and Family Services, John Martin Director of the Ohio Dept or MR/DD and Kathe Shelby, Ph.D., Director of the Ohio Office of Exceptional Children.
 
Afternoon Breakout Sessions will include more detailed information on how to support, serve, and enhance the lives of Ohioans with Disabilities and their families.  –More details forthcoming. 
 
 
Wednesday, April 1, 2009 Rally
Ohio Statehouse – Statehouse Lawn, West Plaza (High St.)
 
Join with hundreds of individuals with disabilities, family members, advocates, providers, county staff and support personnel to present a united voice.  Call your state legislator now and make an appointment to visit them and express your views directly.
 
11:00 a.m. – 12:00p.m.   Disability Public Policy Legislative Rally – Exhibit Tables open at 10:30 a.m.
All Day                          Scheduled Individual Legislative Appointments Make your appointments now as legislators schedules will be filling up quickly.  If you need help making an appointment with your Representative or Senator, contact the ASA-ASO for help at This e-mail address is being protected from spambots. You need JavaScript enabled to view it  
OCALI to hold Ohio Conference in November
The Ohio Center for Autism and Low Incidence (OCALI) is pleased to announce the 2009 Autism and Low Incidence Disabilities Conference and Exposition, November 18-19, 2009, at the Greater Columbus Convention Center, Columbus, OH.

OCALI has hosted autism and low incidence disabilities conferences since its inception in 2005, and for 20 years prior when it was known as ORCLISH (Ohio Resource Center for Low Incidence and Severely Handicapped). Over the past two years, OCALI, as a member of ASA's Network of Autism Training and Technical Assistance Programs (NATTAP) organization, has taken the lead in hosting the NATTAP Conference. We are honored to have been a part of this work, and look forward to a continued role as a partner on future NATTAP initiatives and activities.

OCALI's mission is to build state- and system-wide capacity to improve outcomes for individuals with autism and low incidence disabilities through leadership, training and professional development, technical assistance, collaboration, and technology. The 2009 OCALI Conference will help advance this mission by focusing on improving programs, implementation, support and overall outcomes for those with ASD and low incidence disabilities (such as hearing impairments, visual impairments, Traumatic Brain Injury (TBI), orthopedic impairments etc.). Conference participants will have the opportunity to experience high-quality professional development and networking opportunities with peers and leaders in the areas of education, interagency collaboration and continuum of services.

We've built a strong platform at OCALI, and are excited and honored to continue our work on effecting system-wide improvements in Ohio, across the nation and the globe in both ASD and low incidence disabilities.

More information about the 2009 OCALI Conference and Exposition will be released soon. The Call for Proposals and Conference Registration will open in April 2009. Information will be posted at www.ocali.org.

ODMRDD to pull proposed Provider Certification rule and Re-File at a later Date
A new concern was recently expressed regarding the cost of implementing the provider background check requirements for renewal certification in paragraph (C)(2)(d) of the proposed new Provider Certification rule .  Therefore, ODMRDD has designated the rule “To Be Refiled,” while we work out new language around background checks.
 
Designating the rule “To Be Refiled” has had the effect of removing the rule from the March 9th Joint Committee on Agency Rule Review (JCARR) agenda.  The rule will be rescheduled for a JCARR agenda after it has been refiled.  For more information, visit http://www.odmrdd.state.oh.us/rules/development.htm#TBRRules

ASA-ASO forming Ohio Autism Advocacy Network - Join Now!

The Ohio Budget is currently under development and autism insurance parity legislation is ready to be re-introduced in the Ohio House.  Additionally, issues regularly come before the state legislature that impact individuals with autism, their families and those who work them throughout Ohio.   And because of this, the ASA-Autism Society of Ohio needs your help.  

 

We are in the process of putting together an autism advocacy network that has constituents in each of the districts of the members of the Ohio General Assembly, both the House and Senate.  We are looking for advocates all around the state to help us with this effort.

 

You can volunteer to participate in two ways:

·         Team Leader:  Each Ohio district will have an assigned team leader who is responsible for carrying the key ASA-ASO/autism messages when meeting with the legislator (Representatives and Senators), coordinating testimony or letter writing for hearings, and for organizing the team members of their district, etc. 

·         Team Member:  Each Ohio district will have several team members that are available to share their own personal ASA-ASO/autism story, to write letters when needed, and to ask from help from their neighbors/families/friends.  Team members may choose specialize on certain topics – ie. autism insurance parity topic, special education funding, etc. 

 

ASA-ASO is also developing a Legislative Advocacy Manual and will provide local training to constituent volunteer advocates. 

 

If you are interested in participating in this effort, please send your Name, address, city,
zip+4, phone, email address, House District Number and Senate District number and whether you are interested in being a “Team Leader” or a “Team Member” to This e-mail address is being protected from spambots. You need JavaScript enabled to view it .  Please put AUTISM ADVOCACY NETWORK in the subject line.  To find your district numbers, visit www.legislature.state.oh.us and follow the directions under "Locating Legislators".

 

For more information, visit our website at www.autismohio.org


Ohio BMV changes policy on Autism Awareness License Plate

 

Because of privacy concerns, the Ohio BMV will no longer be releasing the names and addresses of those who purchase the Ohio Autism Awareness License Plate to the ASA-Autism Society of Ohio.  $25 from the purchase of each plate benefits the ASA-ASO and we have been sending thank you notes to all those who have purchased a plate.  However, we will no longer be able to do so.  The BMV is currently looking into options to add customer consent to the special license plate process so hopefully we will be able to go back to thanking folks formally in the future.  But whether we are able to send a formal "thank you" or not, please know that the purchase of an autism awareness license plate makes a big difference and helps us help individuals with autism, their families and those who work with them throughout Ohio.


Federal Update

 

From the ASA: Urge Congress to support Achieving a Better Life Experience Act of 2009 
The Autism Society of America is pleased to support the Achieving a Better Life Experience Act of 2009, ("ABLE" Act), S. 493/H.R. 1205. This legislation was recently introduced by Senators Bob Casey (D-PA), Richard Burr (R-NC), Edward Kennedy (D-MA) and Sam Brownback (R-KS) in the Senate and the House companion bill was introduced by Reps. Ander Crenshaw (R-FL), Patrick Kennedy (D-RI), Cathy McMorris Rodgers (R-WA) and Kendrick Meek (D-FL). This critically important piece of legislation has the potential to help improve the lives of all
affected by autism.

This legislation is designed to encourage individuals with autism (and
other disabilities) and their families to save for disability-related
expenses and will supplement, rather than to replace, benefits
provided by other sources such as Medicaid and private health
insurance coverage. The ABLE Act authorizes "ABLE Accounts," which are similar in many respects to existing Individual Retirement Accounts (IRA) and 529 college savings plans. Provided certain rules are met, these disability savings accounts will be exempt from federal taxation.

Families of individuals affected by autism often find themselves in a
position of financial frustration. Our families want nothing but the best for our children and we are often faced with astronomical expenses in connection with providing appropriate services.

To help improve the lives of all affected by autism, simply take a moment and visit http://www.autism-society.org/site/R?i=0zjC4gkgh4yNhj_Wsy3EKw.. to send an email to Congress today.

The time for action is NOW! Urge your U.S. Senators and Representative
to co-sponsor the Achieving a Better Life Experience Act of 2009,
("ABLE" Act), S. 493/H.R. 1205

Thank you for your support.

Sincerely,
Lee Grossman
President & CEO
Autism Society of America | 7910 Woodmont Avenue, Suite 300 | Bethesda,
Maryland 20814-3067

Get Involved:
www.autism-society.org/site/PageServer?pagename=getinvolved_home
Support/Join: www.autism-society.org/site/PageServer?pagename=join_home
Make a donation Today: www.autism-society.org/site/PageServer?pagename=donate_home
About Us:
www.autism-society.org/site/PageServer?pagename=asa_home
Contact Us: www.autism-society.org/site/PageServer?pagename=asa_contact
 
President Signs Legislation to Double IDEA Funding: CEC and Special Educators Land Historic Victory
 


Upcoming Events, Resources, etc.:

 

 

ASA-Greater Cincinnati organizing Bus for statehouse Rally
Complete details on this and other activities in their latest newsletter:
FEAT of GC and ASA-Greater Cincinnati Chapter to host Dr. Vincent Carbone
FEAT of GC and ASA-Greater Cincinnati Chapter are officially bringing Dr. Carbone to Cincinnati October 16th and 17th, 2009.  Further information to be coming soon.  Please visit his website at drcarbone.com
FEAT of Greater Cincinnati and  ASA-Greater Cincinnati present The First Annual Bud Newsom Spring Conference
Drake Conference Center, Date: April 18th Time: 8am-4pm

Upcoming Seminars from ASA-Northwest Ohio Chapter
 
Understanding Your Rights: Whose IDEA is This?” will be held on March 11 and 12 at the Toledo Hospital Education Center Auditorium, with Lynn Mielnik, M.S., CCC-SLP. Lynn will cover parents' rights under special education law including changes that were made to Operating Standards for Ohio Educational Agencies serving Children with Disabilities in July 2008. Lynn Mielnik is the State Support Team Region 1 (formerly the SERRC) associate director of special education services. She serves as a resource for staff, districts, and parents in Region 1 in the areas of special education compliance, school improvement, universal design for learning, and assistive technology. She has over 25 years of professional expertise in the areas of education, special education, and speech pathology and audiology.

7 Evidence-Based Strategies for an Effective Early Intervention Program” will be held on March 25 at the Toledo Hospital Croxton Memorial Auditorium and March 26 at the Lucas County Board of MR/DD Family First Zone, presented by Dr. James Ball. This presentation will discuss seven systematic techniques for working with children with an autism spectrum disorder. It will focus on teaching specific skills, enhancing motivation, and generalization training. A step-by-step demonstration will be presented using real life examples. Modifications will be explored that allow this particular program to be effective with students significantly challenged with autism, as well as those students with Asperger Syndrome. Myths and facts about Applied Behavior Analysis will also be covered. A question and answer period will be provided. Dr. James Ball a Board Certified Behavior Analyst, is the President/CEO of JB Autism Consulting. He provides private consultation to organizations, schools, and families regarding staff training, parent training, home support services, classroom design/support, and behavior management/assessment. A past member of the Autism Society of America Board of Directors, he is currently co-chairperson of the ASA Panel of Professional Advisors.

A Land We Can Share”: Access to the Literate Community for ALL” will be held on April 1 and 2 at the Education Center Auditorium, with Paula Kluth, Ph.D. presenting. Dr. Kluth will explore how many learners have been excluded from literacy experiences that are inclusive, rich, and challenging. Participants will also learn some strategies for including and supporting students with disabilities in reading, writing, speaking, and listening activities. Ideas for enhancing skills in comprehension, fluency, and vocabulary will be highlighted. Dr. Kluth is a consultant, teacher, author, advocate, and independent scholar who work with teachers and families to provide inclusive opportunities for students with disabilities and to create more responsive and engaging schooling experiences for all learners. She is a former special educator who has served as a classroom teacher, consulting teacher, and inclusion facilitator. Her research and professional interests include differentiating instruction, and supporting students with autism and significant disabilities in inclusive classrooms.

To register, download the registration form at www.asno.org, fill it out, and send it in with payment to Autism Society of Northwest Ohio
Attn: Workshop Series


ASA-Dayton Chapter to Hold Autism Walk April 4
If you haven't started your walk team yet, there's still plenty of time!
Visit our walk website:
http://www.ASADayton5KWalk.kintera.org to
start your walk team, join a team, or register as an individual! If
you can't join us for the walk or are physically unable to walk, no problem!
Join as a Virtual walker and still get your free walk t-shirt! This year's
shirt was designed by a 9 year-old with autism and features Winnie the
Pooh. Click the "order merchandise" link to view his artwork.

WDTN's own Holly Samuels will be our emcee for the day as we welcome Maddie
Georgi, CMT's Music City Madness finalist. Maddie will perform her original
songs including "Take My Hand" written for her brother, who has autism. Her
music is amazing! This free concert, as well as the free sensory-friendly
children's activities and free, special-needs related vendor fair &
raffle are well worth coming out for. You do not have to participate in the
walk to enjoy the other festivities!

We have worked very hard to make sure this year's event is even more
organized and more fun than last year! We will have two huge tents with
sides to keep our vendors and concessions warm and dry. Check in and
walk-in registrations will be a breeze. Come prepared for the weather, as
we will walk rain or shine! And bring your sign for our Walk of Fame, which
will be along the walk route. For more information on the Walk of Fame or
any aspect of the walk, visit our walk site or give us a call.

All funds raised stay right here in the Greater Dayton area to help our
families who are living with autism. We will also have information
available at our Autism Awareness merchandise booth on our new Family Grant
program. Stop by and pick up your application packet. Money raised at the
walk will be used to fund our Family Grant, so come on out, support this
great cause, and have a great time with your family!

If you have any questions or need printable registration forms, contact
Nancy at
bernofam@gmail.com or 937.859.4964. We are still looking for
sponsors and vendors so if you have an autism-related business and want to
be a vendor, please contact us. If your company would like to be a sponsor
and get great advertising while they support a great cause, contact us
soon. Our cut-off for the logos on the shirt is March 6th. Please hurry!
We need your support!

ASA-TRI COUNTY CHAPTER OF OHIO MARCH MEETING NOTICE

Monthly Meeting will be held on THURSDAY, MARCH 19, 2009.  Our speaker will be
Elaine Gamberale form Mahoning County Pathways Two.  She will update us on comprehensive vocational  evaluations for students with disabilities and a new job training program that is in place this year at YSU.

MARCH MEETING LOCATION HAS BEEN CHANGED TO: ZION LUTHERAN CHURCH, 3300 CANFIELD RD.  IN CORNERSBURG.   There will be a business meeting at 6:30 p.m.
Speaker presentation will begin promptly at 7:30 p.m.

Just a reminder that yearly $10.00 membership dues are now being collected.  Dues can be paid at the meeting or via our website.

Please visit our website for important information regarding ASA-Tri County Chapter Ohio.
www.triautism.com .  Meeting, activity and organization information can be found on this site.

Please join us Thursday, March 19, 2009
Email:  TriCounty Autism This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Seminar: A Walk Through the IEP
A Good Learning Opportunity For All
Parents - Experienced and New
Learn about the NEW forms
 
Speaker: Beth Rohrbacher, Consultant
State Support Team Region One
Tuesday March 31, 2009
6:30-8:30 p.m.
 
Location: The Ability Center
5605 Monroe St
Sylvania Ohio 43560
Sponsored by: The Arc of Lucas County
 
There is no charge for this program.
Space is limited.
Please Register By:
March 26, 2009
Phone: 419-882-0941
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
Questions? Call 419-882-0941 or www.arclucas.org
Competition for Young Artists with Disabilities
VSA Arts and Volkswagen
Deadline: June 19, 2009
Number of Awards: 3
Award: 1st prize: $20,000, 2nd prize: $10,000, 3rd prize: $6,000
http://www.vsarts.org/PreBuilt/showcase/gallery/exhibits/vw/current/
The program is open to artists between the ages of 16 and 25 who  are living in the United States and who have a physical, cognitive, mental, or sensory disability. Submissions must be original  work completed within the last three years and after the onset of  disability .Eligible media include, but are not limited to, paintings and  drawings (oil, watercolor, acrylic, pencil, or charcoal), fine  art prints, photography, computer-generated prints, digital art,  and time-based media (video, film). Work must have a visual component. Both representational and abstract work are welcomed.

Article: Q-and-A: How to better manage behavioral disabilities
Behavioral specialist Deborah Lipsky, who learned to control her own autism and helps schools develop behavior plans, offers advice to educators on improving the behavior of students with disabilities. Negative behavior, she says, is often an attempt to communicate: Meltdowns signal a person's overwhelming frustration, she says, while tantrums are used to manipulate others into changing their behavior.
Article: Study links gene variant to autism, gastrointestinal problems
U.S. researchers found that a mutation in the MET gene could play a role in the development of autism and gastrointestinal disorders. However, they did not find a link between the gene variant and patients with autism who lacked gastrointestinal problems. The findings suggest the gene mutation might cause autism in a certain group of people but might not be linked to other types of autism, the study's author said.
http://www.usatoday.com/news/health/2009-03-02-autism-gene_N.htm

Article: Does music help students with autism?
More parents and educators eager to reach students with autism are embracing music therapy, but little research backs the approach. "We know that music-therapy treatment is associated with improvement, but we don't know what the cause of that improvement is," said University of Michigan psychology professor Catherine Lord, who specializes in autism research.
Seneca County Autism Family Support Group
                        Meets at the Early Childhood Center of Fostoria, 801 Kirk Street, Fostoria
6:30-8pm
                        Contact Jessica Weisenauer for questions at 419-436-1898
 
April                Tuesday April 7th
They will be no guest speaker this month. Parent, grandparent, and caregiver support meeting will take place from 6:30-8 p.m.
 
May 5              Tuesday May 5th
Services and Supports 6:30-8pm
Sandy Brickner from OCECD
(Ohio Coalition for the Education of Children with Disabilities www.ocecd.org )
 
Participants will gain an awareness of services and supports that are available to families of children with disabilities from local schools and from state and local agencies. The difference between a service and support will be discussed and participants will learn how to determine what services and supports the child may need by developing an individualized plan.
 
*These will be open to parents, grandparents, professionals, and anyone that has been touched by someone with Autism.
*RSVP's are appreciated but not required.
*Childcare will be provided in a child friendly atmosphere. For anyone wishing to use this service, we will need the number and age of children one week prior.
News from Ohio Department of Education-Office for Exceptional Children
 
Whose IDEA Is This? is now available in 5 additional languages and accessible formats 
Whose IDEA Is This? (Procedural Safeguards Legal Notice) is now available in Arabic, Ukrainian, Spanish, Russian and Somali on our Web site by clicking here and searching for keywords Whose IDEA Is This?.  It is also available in accessible formats (e.g. Braille, large print, compact disc or cassette tape) by contacting the Center for Instructional Supports and Accessible Materials (CISAM) at the Ohio State School for the Blind.
  
ODE proposal requests increased federal alternate assessment limit; ODE Request for Exception application available online 
The U.S. Department of Education has directed Ohio to limit the count of proficient or higher scores on the alternate assessment to 1% of its statewide tested population. Over the last several years, the number of local education agency (LEA) applications and the number of students for which exceptions are being requested have increased significantly. Because of this, it is important to understand that it is likely that the number of students approved for individual LEAs will decrease when compared to the number granted in previous years. 
 
In an attempt to assist districts that are using the alternate assessment for greater than 1% of their total tested student population, Ohio is submitting a proposal to the U.S. Department of Education requesting permission to exceed the 1% cap restriction since the 2% modified assessment has not been implemented. There is no guarantee that this proposal will be approved.  If the proposal is not approved, the Department will process the requests in a manner that ensures Ohio adheres to the 1% restriction.  If the proposal is approved, the state will distribute the additional allotment to LEAs based on the size of the district and nature of the disability conditions of the identified students..
 
The Request for Exception (RFE) to the Cap on Alternate Assessments for 2008-2009 application can be downloaded from the ODE Web site by clicking here and searching for keywords Request for Exception. This document provides detailed instructions and explains the criteria for reviewing requests, things to know before you apply, and data-submission requirements.
 
If you have questions about the completion of this application, please contact Lindsey Ladd at (614) 752-8731 or This e-mail address is being protected from spambots. You need JavaScript enabled to view it .
Upcoming Trainings in Boardman, OH and PA
My name is Dena Gassner and I am a faculty member for Health  
EDucation Network out of Minnesota. I can send my bio/cv which will  
let you know the other things I do.

I am writing to let you know of three upcoming opportunities for  
your families, individuals and providers affected by autism  
differences. I would greatly appreciate it if you could help "get  
the word out".

 TUESDAY APRIL 14
WOMEN'S FOCUS GROUP
 7:00 PM
HOLIDAY INN SOUTH BOARDMAN, Ohio
This group will be open to women 18 and up who are living with PDD/ 
Asperger's (self-identified or diagnosed).

 The purpose of this event will be to have women talk about their  
priorities. I would like them to chat about their lives and their  
futures and what we can do to change what they experienced in the  
past for future generations.

All participants will need to be willing to sign releases allowing  
us to use their language in written materials (which will be used to  
formulate programs and research). They do not have to let us use  
their names.

They will also need to agree to allow individual photos (to allow us  
to maintain records only; not for publication).

We are requesting that they participate independently. If they  
require support, they are welcome to have that assistance, but we  
request that the support person not speak on behalf of the focus  
group participant.

This is sponsored entirely by my organization, the Center for  
Understanding. Participants need to contact me directly at This e-mail address is being protected from spambots. You need JavaScript enabled to view it  

WEDNESDAY APRIL 15
 HOLIDAY INN BOARDMAN, Ohio
 ALL DAY TRAINING
 8:00-3
 HEALTH ED TRAINING
"Vulnerabilities in Asperger's Syndrome and Similar Social/Cognitive  
Challenges"
 Reservations and fees are available on the health-ed.com website.
CEUs are available.
THURSDAY APRIL 16
MONROEVILLE, PA COURTYARD
 ALL DAY TRAINING
 8:00-3
 HEALTH ED TRAINING
"Vulnerabilities in Asperger's Syndrome and Similar Social/Cognitive  
Challenges"
 Reservations and fees are available on the health-ed.com website.
CEUs are available.
FRIDAY APRIL 17
SHERATON FOUR POINTS MARS, Pennsylvania
8:00-3
 HEALTH ED TRAINING
"Vulnerabilities in Asperger's Syndrome and Similar Social/Cognitive  
Challenges"
 Reservations and fees are available on the health-ed.com website.
CEUs are available.

AGAIN FOR THE HEALTH ED TRAINING EVENTS, CONTACT HEALTH-ED.COM.

 THANKS FOR SPREADING THE WORD!
 DENA

 Dena L. Gassner, MSW
 Program Director
 The Center for Understanding
 7127 Crossroads Blvd. #102
 Brentwood, TN 37027
 Phone: 1-615-300-3369

Grants for Summer Programs 
Once again "Individuals Devoted to Educational Advocacy" (IDEA) is providing grants and scholarships for students with special needs for summer programs..
 
For more information, contact:
Lisa Sneiderman, President of IDEA Inc.
4070 Mayfield Road Cleveland, Oh 44121
216-371-9874
 
They have a limited amount of funds, so please contact them as soon as you can!  Deadline for consideration is the end of March.
 
Check out their website at:  http://www.ideaohio.org
Winter edition of the DD Quarterly now Available!
Welcome to the Winter edition of the DD Quarterly! Read the newsletter online to learn about issues relevant to Ohioans with disabilities. Articles in this edition cover topics such as ODDC news and announcements, ODDC grantee activities, the statehouse and budget, news from other agencies and organizations, events and more. See below for the list of articles.

The DD Quarterly is produced for the Ohio Developmental Disabilities Council by the Ohio Legal Rights Service.

=========================

DD Quarterly - Fall 2008
News from the Ohio Developmental Disabilities Council

Text version: http://olrs.ohio.gov/ddq/DDQWinter09.htm   
PDF version: http://olrs.ohio.gov/ddq/DDQWinter09.pdf   

=========================

In this issue:

1. ODDC: Advocating for Change for Over 30 Years
2. General Assembly Approves Meeting Options
3. Chairman's Message
4. ODDC Receives Positive Approval Rating
5. ODDC Announces New Grant Projects for 2009
6. SOLIDARITY's 10th Anniversary
7. Advocacy in Northeast Ohio Grows by LEAPs and Bounds
8. Individual and Family Involvement Leads to Better Programs
9. Meet ODDC's New Members
10. Legislative Event and Rally
11. Tax Benefits and Credits for Qualifying Taxpayers with Disabilities
12. Cincinnati UCEDD Supports Leadership Network
13. Ohio's Coordinating Center of Excellence in Dual Diagnosis
14. Around the Statehouse
15. Administration Submits 2010-2011 Budget Bill
16. Emergency Management Materials Available
17. ADD Commissioner Retires
18. News from Ohio Legal Rights Service
19. Southeast Ohio Arc Family Members Join Winter Olympics Initiative

=========================

If you have questions or comments about the DD Quarterly newsletter, contact:

Tom Hemmert
Ohio Legal Rights Service
50 W. Broad St., Suite 1400
Columbus, OH 43215
Voice: 614-466-7264 or 800-282-9181
TTY: 614-728-2553 or 800-858-3542
Email: This e-mail address is being protected from spambots. You need JavaScript enabled to view it
The Ninth Annual Multiple Perspectives on Access, Inclusion, and Disability Change, Challenge, & Collaboration
April 28 - 29, 2009
The Ohio State University Campus, Columbus Ohio
http://ada.osu.edu/conferences.htm
REGISTRATION IS OPEN
 
The 2009 theme “Change, Challenge & Collaboration” reflects the critical place in history we occupy.  The program recognizes contemporary problems and explores their roots while emphasizing the opportunities for innovation and collaboration that reside in our current challenges.
 
Over thirty concurrent sessions including:
•         Access to the Museum - Georgina Kleege;
•         The AccessText Information Network - Christopher Lee & Robert Martinengo;
•         Assistive Technology, Web Access, Text Access - Staff, Office for Civil Rights, Dept. of Educaiton; 
•         Public Policy Update: National Council on Disability and World Institute on Disability - Kathleen Martinez and Linda Wetters;
•         Disability Studies: Town-Gown Collaborations in Toledo - Jim Ferris;
•         A Simpler Time?: Managing Workplace Mental Health Issues Post-ADAAA - John Finch, William A.. Nolan & Sondra Zardus;
•         The ADA Amendments Act: What Are the Implications? - Staff from the Cleveland Regional Office, US. EEOC;
•         More than the ADA: An Inventory of U.S. Disability Rights Laws - Doug Goeppne;
•         Job Coaching Individuals With Autism:  Strategies for Employment Skill Development - Jaina Blackford & Lourdes Maldonado;
•         Housing: Accessible, Affordable and Accommodating to Individuals with Disabilities - Michelle Atkinson & Jane Perry;
•         New Work in Deaf Studies at OSU - Brenda Brueggemann, Marla Berkowitz & Trena Shank;
•         Writing the Self, Writing the Other: Author, Audience, and Popular Disability Narrative - Nicholas Hetrick,  Krista Paradiso & Melanie Yergeau.
The 2009 Ken Campbell Memorial Lecture on Disability Policy:
 
The public lecture is a highlight of the conference and is free, open to the public.  The 2009 lecture, A Perfect Storm: Serving Wounded Warriors With Disabilities, will be presented by Paul D. Grossman, JD, Adjunct Instructor, Hastings College of Law and Mary Lee Vance Ph.D., University of Wisconsin Superior and including short remarks from David M. Booth, Trial Attorney, Disability Rights Section, Civil Rights Division, US Department of Justice & L. Scott Lissner, ADA Coordinator, The Ohio State University.  Following the lecture there will be  a community reception at the Urban Arts Space featuring accessible tours of the MFA Thesis Exhibition and a welcome by  Berkeley University lecturer, author and disability studies scholar  Georgina Kleege. 
.“It’s Our Story” is an inside view of the reality of life with a disability. An oral history project that speaks directly from the voices of those who know what it’s like, directly to those who want to know how it is. The over 500 narratives contained within the digital archive has the power to change the way the world sees disability, and the way the disability community sees itself. The Story Flag will be on public display in the Blackwell Hotel Ballroom Lobby on April 28th and 29, 2009 during the Multiple Perspectives Conference. This Exhibit is free and open to the public. For more information on the Story Flag, please visit their website at: http://dmi-us.blogspot.com.
 For additional information and registration visit: http://ada.osu.edu/conferences.htm
Milestones 2009 Autism / Asperger's Conference
http://www.milestones.org/news_conferences.htm
Save the date:
Landerhaven, Mayfield Ohio, June 15, 2009
Keynote Speaker: Brenda Smith Myles, author of The Hidden Curriculum
http://www.asperger.net/bookstore_9032_HC_package.htm
Autism Forum 2009
presented by Walsh University and SCAAN
Tuesday, March 24, 3009
7:30am-3:00pm
Barrette Business and Community Center
Walsh University
2020 E. Maple St., NW
N. Canton, OH   44720
Lunchtime Keynote, Jon Peterson on the Autism Scholarship
For additional information or to register, contact the ARC of Stark County at http://www.arcstark.org/

Article: IACC Advisory Panel Releases First Federal Strategic Plan for Autism Research

Columbus Hosts Center for Self Determination Training  
 
From the ODMRDD E-Newsletter Pipeline:
On March 24 and 25, 2009, the nationally-recognized Center for Self Determination will host a training in Columbus titled, “Inventing the Future: Implementing Self Determination Across Disability and Aging.”  According to training organizers, Columbus is one of only five locations selected for the training, nationwide. 
 
The Center for Self Determination’s website notes that self determination is a way to have people not just survive, but flourish in an environment fraught with potential cutbacks. This two-day training event is designed for people who are committed to helping individuals who are aging or have a disability experience greater freedom as they craft a meaningful life.
 
ODMRDD Director John Martin, notes, 
 
“We are committed to supporting the efforts of focused self determination initiatives such as this training, and we have seen first-hand the progress that can be made when individuals and families make self determination principles a part of their lives.”
 
The training location is the Ramada Plaza Hotel and Conference Center, 4900 Sinclair Road, Columbus, Ohio, 43229  ( I-71 and Morse Road)..  Registration is $149 through March 16, and is $169 after that.  To register, please use the registration form on the Center for Self Determination’s website:  http://www.centerforself-determination.com/101reg.html

Conference Call about Child and Adolescent Mental Health Issues

 

Friday, March 20 200911:00am - 12:30pm

 

An open discussion with Dr. Ken Duckworth, child and adolescent psychiatrist and NAMI’s Medical Director. He will discuss issues of interest to participants and will respond to any questions about child and adolescent mental health issues. We hope that you will join us!

To access the toll-free call, please dial 1-888-858-6021; access number 309918#.

 

Audience: Families

 

Location: Telephone Conference Call
Organization Name: Dr. Ken Duckworth, NAMI Medical Director
Contact Name: Dr. Ken Duckworth
Contact Phone: To access the toll-free call, please dial 1-888-858-6021; access number 309918#.

 

Cost: No charge

 


Online Support Group - Moms of Asperger Girls

To Parents of Girls With AS:
I have been helping to moderate a wonderful discussion group called  Moms of Asperger Girls.  Dads are also welcome.  It’s a Yahoo Group similar to ours, but involves parents from all over the country – a few international. The volume of messages can be high some days, so the “daily digest” setting is recommended to start.  If you are the parent of a girl with Asperger’s,  please join us at:
http://health.groups.yahoo.com/group/MomsofAspergerGirls

 


Upcoming Events, NE Ohio

MARCH
 
Mon., 03-09 ASDs Understanding the Mis-Understood (Wooster)
 
Tues., 03-10 Dealing with Mean Girls - Bullying (Strongsville)
 
Sat., 03-14 Conf for Families of Special Needs Children
 
Sat., 03-14 6th Annual Blue Ribbon (Solon)
 
Sat., 03-14 Sensory Processing (Cleveland)
 
Mon., 03-16 Pump It Up Sensory Night (Medina)
 
Tues., 03-17 ASPIES Greater Akron Parent Support Group (Akron)
“Meet & Greet” with A.S.K. (Activity Schedules for all spectrum kids) Bring your kid to group night!
 
Tues., 03-17 Transition Drives the IEP (online audio - OCECD) 
 
Thurs., 03-19 Secondary Transition for Children with Disabilities (Middleburg Hts)
 
Mon. thru Thurs., 03-23 to 03-26 Spring Break Discovery Club (Twinsburg)
 
Tues., 03-24 SCAAN Autism Forum (Canton)
 
Tues., 03-31 Deadline for Contest (ages 6-12) Arthur PBS  http://pbskids.org/arthur/allkidscan/index.html
 
Tues., 03-31 Special Education Law (Cleveland)

For more information on any of these events, contact Joy Spenser at This e-mail address is being protected from spambots. You need JavaScript enabled to view it


7th Annual Protecting Ohio's Children Conference
Friday, April 3, 2009
The Conference Center at NorthPointe, Lewis Center, Ohio
Prevent Child Abuse Ohio is offering its 7th Annual Protecting Ohio's Children Conference on Friday, April 3, 2009 at The Conference Center at NorthPointe in Lewis Center, Ohio.
The keynote of the conference is Jacqueline Wynn, Ph.D., Director, Center for Autism Spectrum Disorders, Nationwide Children's Hospital who will address "Caring for Children with Autism Spectrum Disorders: Managing Stressors."
Additional sessions offered at the conference include:
  • Taking A Look at Ohio's Safe Haven Law
  • Raise Your Voice
  • Dental Care and Child Maltreatment
  • Taking A Look at the Collaboration between Two Home Visitation Programs - Help Me Grow and Nurse Family Partnership
  • Parent Panel - Triumphs and Challenges
  • Exploring Unique Aspects of Deafness that Impact Service Provision
  • Childhood Obesity and its Linkage to Child Maltreatment
  • It's All About the Energy: Life Success for Children with Mental Illness
  • Ohio's Alternative Response Journey: A View from Four Counties
  • Looking Out For Children Who Are Visually Impaired or Blind
$120.00 regular registration fee postmarked by Monday, March 23, 2009
$135.00 walk-in registration will be accepted on the day of the conference (on a space available basis)
To view and print a copy of the conference brochure, please visit our website at http://www.pcao.org/programs/pdfs/2009ProtectingOhio'sChildrenConferenceBrochure.pdf.

Special Education Seminar, Cleveland
On March 31, 2009, the Cleveland Metropolitan Bar Association is hosting a seminar on special education law for parents, professionals and practitioners.  This is a full day seminar, and will bring parents and practitioners up to date on various issues of importance and concern.  Many members of the special education bar in Cleveland will be presenting, so this seminar provides the opportunity to meet them and ask questions.  The cost is only $25.00 for Parents and $65 for Professionals (with CEU) – and includes lunch.

Topics include Special Education 101, Improving your Child's Behavior, Due Process, Attorney's Fees and Other Remedies Under IDEA, Remedies for Disability Harassment.

Please click on the link below for the Registration Form.  We hope you find this information helpful.    

http://www.admail.net/file/5798/9f09/

Article: Tax Strategies for Parents of Children with Special Needs
 


 


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