University of Florida

Participants Accepted until:  December, 2011

Participant Criteria:  One parent or legal guardian of individual diagnosed with autism, Asperger syndrome, or Pervasive Developmental Disorder – Non-specified AND one adolescent (age 11-18) neuro-typical sibling

Description of Study:  This is an exploratory study that aims: 1) to characterize adolescent siblings of individuals with autism spectrum disorder (ASD) by describing socio-demographic data, coping strategies, relationship networks, psychological well-being, and life orientation; 2) determine associations among variables of stress, resources, and Sense of Coherence using a health promotion model.

The study requires that one adolescent sibling and one parent/legal guardian give written consent and complete questionnaires.  There are two parent questionnaires and four adolescent self-report surveys to be completed by the adolescent brother/sister.  The questionnaires can be completed in person, mailed or by telephone.  It will take approximately one hour for both persons to complete the study.  A gift card in the amount of $20.00 will be given to each sibling when the questionnaires are returned to the researcher.

IRB granting organization:  University of Florida approved 5/24/11

Individual Conducting Study:  Laura O. Smith, MS, ARNP

Supervising Professor:  Jennifer H. Elder, RN, Ph.D., FAAN

To Participate:  Laura O. Smith (727) 641-3890 or email This e-mail address is being protected from spambots. You need JavaScript enabled to view it

 

 

 

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